[Annalisa]

Hello My name is Anna and I am 61. I have four children. My eldest 37 and my youngest showed white spots in their MIR. My youngest 30, has had many mingrains. He has now had a blood check and found to have CADISAL. I have had many mingrains and my mother had many strokes before she passed away. I live in Adelaide Australia. I would like to know more about this horrible news. Regards Anna

[Jules A]

Hi Anna,
I don't have any information for you but wanted to say welcome to the group.

[Annalisa]

Originally Posted by Jules A

Hi Anna,
I don't have any information for you but wanted to say welcome to the group.

Thankyou for your welcome I hope I can get some information and perhaps some positive news because all I have found out so far is very devistating. Regards Anna

[the Bird]

Welcome Annalisa, I hope you get some good news too....
there is another newbie with Cadisal....I just saw her....she had been incorrectly dx with MS....(I have MS that's why I remember the story, but not her name).....find her hello, seems like someone gave her a link to go to!

Welcome!

[tkrik]

Hi Annalisa, welcome. I do hope you find the information you are looking for. This site is so huge and has so many forums as well as incredibly nice people on it.

I wish you and your son the best of luck.

[MelodyL]

Hi there Annalisa.

My name is Melody. I did some searching and found the link to a Cadisil site.

Here you go: Hope this helps.

http://www.igive.com/welcome/warmwel...fm?c=32891&m=0

Take care,
Melody

[timw]

Originally Posted by Annalisa

Hello My name is Anna and I am 61. I have four children. My eldest 37 and my youngest showed white spots in their MIR. My youngest 30, has had many mingrains. He has now had a blood check and found to have CADISAL. I have had many mingrains and my mother had many strokes before she passed away. I live in Adelaide Australia. I would like to know more about this horrible news. Regards Anna

Hello Anna,

I am looking for information on the symptoms of this disease. My wife has a family history of cadisil in which both her mom and brother died at around 40-45 years of age. My wife is now 40 and has started to show some negative behavioural signs. I would like to know more to see if this is cadasil or not.

[ginnie]

I want to welcome you to Neuro Talk. I am sorry for the trouble your family is experiencing with the condition you mentioned Carisal. There is a search bar at the top of the page, try typing in that illness, and see what thread pops up. I have not heard of this illness before. I googled it and didn't come up with this disorder. Is it called by another name? There may indeed be people on this site you can better direct you. You are welcome here. This is a compassionate group of people, and you can join in on any conversation. You might want to ask the moderators of the site if they have information on this illness. I do wish you and your family all the best. I hope there can be a solution and way to move forward. ginnie

[dlpoole9]

Hello,
I have just joined due to the fact my husband was just diagnosed with Cadisal.
We are investigating the genetic testing to prove that it is CAdisal. My husbands mother died at the age of 52 from what they thought was Alzheimer's, but perhpas not.
Any comments about the genetic testing would be appreciated.

[ginnie]

We are glad to have you at NT. You are welcome to join in on any conversation on any of the boards. With information, there is a search bar up at the top of the page. type in Genetic testing, I am not sure what will come up. don't hesitate to google up genetic testing. Most teaching institutes have research facilities that deal with this. One is the Universiy of Columbia Medical Center, in Colummbia Mo. Many more are all over the country. I hope others will respond to you and give you more information on how to get some help. Welcome again, there are some very kind folks in this site. ginnie