Hi Mag,
Im new to this site and Im sorry I don't have any answers for you.
Except-
That deep down inside we all have incredible strength that we don't know about. It's so hard to "pigeon hole" your pain when it's right there in your face 24/7. But when we draw on that strength and look after our emotional pain which comes with physical pain then sometimes we can breathe easier and if only for a short while be able to focus on something else other than the horrendous pain we know so well. I hope and pray that you get some answers and relief as quickly as possible. Be good to you