Hello,
My name is Sandra Williams and I am learning to live with a different me. I am also learning to live with a different son, and my husband and second son are probably wondering when life will be normal again. We all look normal, but we aren't. So many times, I hear, "just get over it. You don't have to let the accident define you." People mean well, but they don't understand. I am looking for information of prolonged post concussive syndrome. I am trying to navigate through this and give my family the tools we need to heal.

I am encouraged by this site and hope to find helpful information here.

Hi Sandra,
Welcome to the NeuroTalk Support Groups!

You may have found it already, but here is the link to the Traumatic Brain Injury and Post Concussion Syndrome Forum

It's a busy forum and there are lots of very helpful and supportive people who post there.

I wish you all the best during your recovery.

Sandra,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

I feel for you. Have also had to learn how to live with a different me and I know it is hard very hard! I never had a concussion but have a brain injury. In my journey learned had to stay away from music because that's all I hear in my head now and it is not good at all! I might suggest to stay away from music for awhile don't want anybody to deal with what I do. Although music can be very healing for others so Idk if should be giving this advice or not but can't hurt I reckon. I used to be an outgoing and talkative person but am completely different now can't talk much or laugh. How did this accident effect you ? I am sorry you are dealing with such a life changing situation. I know all to well how it can disrupt your life . I will never be the same again. Best wishes sent for you and your family! I hope you can get back to normal!

Hey tyandclaysmom,

Love the boys' names

And you are correct....people don't understand.......'just get over it' to me is very insensitive remark to make and I'm sorry you are dealing with this.

I didn't have an accident but have small fiber neuropathy caused by diabetes/chemo treatments. My whole world changed in an instant. I'm only 9 months into my journey and I know it's a long road but I'll get there.

We're all here for you and we care. Lots of folks on here that will have good suggestions that may help your family.

Debi from Georgia

Just wanted to check in on you......y'all doing ok ?

Please let us know what's going on with you and the family.....we really care and want to help if we can

Debi from Georgia

Hi
I am the mother of a newly diagnosed 15 year old son, who has had a constant headache since Oct 30, 2013. I am trying to figure out how to post a thread of my own instead of just replying. A bit new to this type of support group. Can someone tell me how to post my own thread? Thanks.
Tara

Welcome to NeuroTalk:

To start a new thread of your own, you have to be on page 1 of the desired forum. The NEW THREAD button is on the left near the top.

Click on NeuroTalk Support Groups to go to the main index to find forums.

Hi Sandra and welcome. As Lara posted there is a very active forum on TBI/PCS. I mostly hang out there but will respond here for now.

When was your injury? Many PCS patients see their symptoms improve over time, although some can be life long. The lingering symptoms often require adjustments in lifestyle, and education to those around us is important.

Tell us more about your symptoms and you will find lots of support and helpful advice.

See you there: http://neurotalk.psychcentral.com/forum92.html

Hi Tara,
If you go to the
Traumatic Brain Injury and Post Concussion Syndrome Forum you will see the New Thread button towards the top left of the page as mrsD has mentioned.

When you click on New Thread, you will get a page that includes Title and New Message.

You could perhaps just use the same Title that you used on your post here "mom of newly diagnosed PCS teen" if you want to do that.

Type your post and then hit Submit New Thread.

Post again here if you're still having difficulty. Someone will help you.