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Old 09-12-2007, 07:44 PM #1
idiana idiana is offline
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idiana idiana is offline
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I have an incredibly rare brain disease, neuro- amylodoma. I have to explain it to doctors sometimes. After full brain radiation, the progression stopped and I have been stable for two years coming up on three. I am left with stroke-like damage. I have left-sided weakness, foot-drop, and the near inability to use my left hand.

Just wanted to say hello. I'm going to look around and see what I can learn.
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Old 09-12-2007, 10:28 PM #2
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Welcome to NeuroTalk idiana, I'm so glad the progression has stopped and you are stable. This is a great place to find and give support.
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Old 09-13-2007, 12:47 AM #3
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring members here willing to help each other as they are able. Again welcome, looking forward to seeing you around.

Darlene
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