Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)

 
 
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Old 05-05-2014, 08:31 AM #2
windrivermaiden windrivermaiden is offline
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Join Date: Mar 2011
Location: CALIFORNIA
Posts: 15
10 yr Member
windrivermaiden windrivermaiden is offline
Junior Member
 
Join Date: Mar 2011
Location: CALIFORNIA
Posts: 15
10 yr Member
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It does sound possible that you have ON.

I'm in my 40's and YES! young people really do get these neuralgias! don't let specialists tell you that they are rare!!

After 25+ years of dealing with several combined nerualgias in the cranial nerves (all but one is affected), what has worked best for me, is a combination of Botox injections, ibuprofen, yoga, and reducing stress with cognitive therapy rather than the "state of the art" newest fangled medications or opiates. I have tried it all, medications, physical therapy, nerve blocks, microvascular surgery, and yes...attempted suicide, in the last 25 years.

Don't give up hope! This is one tough bugger to live with. It seems that one can not beat it so you have to find a way to make living better despite it.

I am finding that yoga is better for me than standard physical therapy, because it concentrates on the mind/body connection and incorporates the full of your life rather than being a 30 minute session directed by someone else's idea of what your pain is like and how your body responds to it. I do my active body practice at home right now, in the quiet of the early morning before I get on with my day (4 am, pre-commute). But to get started with some good support, a group practice is a good thing, group practice just doesn't fit in my schedule right now.

Perhaps there is a wellness center on your next duty station that has yoga classes. I know when I was at Ft Eustis many! many! years ago, that there were classes in yoga thru the wellness center. Use your resources and be persistant.

Perseverance and learning to let go and go forward despite the pain seems to be the only given.

Good luck.
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