Parkinson's Disease Tulip


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Old 09-19-2012, 12:34 PM #11
Bob Dawson Bob Dawson is offline
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Quote:
Originally Posted by ginnie View Post
I don't have PD, but I witnessed my neighbors decline and bitterness. I get that way too with my own demons of the body, really angry.
Crank up some music, loud enough to drown out your pain. This and reading is what I do to try and help myself. I have Bob Dylan on, his newest called Tempest. Very somber, makes you think. I do wish you all the best. ginnie
Ginnie,
It defies imagination how many times people on this site have intersections with each other - well here it is again. You are listening to the Tempest album, which only came out about a week ago.. When your message arrived here, at that exact moment I was listening to Long and Wasted Years:

And, as you mentioned Dylan, I take it as licence to talk about him and the Web Sheriff yanking out Dylan’s song to Lenny Bruce, from my website. This Dylan guy writes a song, figures he owns it! Seriously, they were very good to me, and put the song back up real fast. : and Dylan’s lawyer called me from London etc. What a class act that Dylan scene is. Here is my story about that:

http://parkinsonsdance.blogspot.com/...hapter-43.html

AND THIS is what I was listening to when your e-mail arrived:
Long And Wasted Years Lyrics by Bob Dylan (the Tempest album):

it’s been such a long long time
since we loved each other and our hearts were true
one time, for one brief day, i was the man for you
last night i heard you talking in your sleep
saying things you shouldn’t say, oh baby
you just may have to go to jail someday

is there a place we can go, is there anybody we can see?

maybe it’s the same for you as it is for me
i ain’t seen my family in twenty years
that ain’t easy to understand, they may be dead by now
i lost track of em after they lost their land
shake it up baby, twist and shout
you know what it’s all about

what are you doing out there in the sun anyway?
don’t you know, the sun can burn your brains right out

my enemy crashed into the dust
stopped dead in his tracks and he lost his lust
he was run down hard and he broke apart
he died in shame, he had an iron heart
i wear dark glasses to cover my eyes
there are secrets in em that i can’t disguise
come back baby
if i hurt your feelings, i apologize
two trains running side by side, forty miles wide
down the eastern line

you don’t have to go, i just came to you because you’re a friend of mine

i think that when my back was turned,
the whole world behind me burned

it’s been a while,
since we walked down that long, long aisle
we cried on a cold and frosty morn,
we cried because our souls were torn
so much for tears
so much for these long and wasted years

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Old 09-19-2012, 04:37 PM #12
ginnie ginnie is offline
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Default Hi Bob,

I was listening to Tempest while I wrote the e-mail, and at a loud volume to boot. Had "Scarlet Town" on. I can't want to read what you say about this guy. I have listened to him since I was a kid. Got to see him several years ago. His poetry speaks of life as it really is. I also listen over and over so I can understand his poetry. How did you get the words? It wasn't in the CD cover. I was on a list so I would get the copy the day it came out. Is there a way to get them on the internet?
Try also Joe Bonamassa, rock a billy blues artist I found several years ago. I am hooked on him too. I do indeed pay for the music of these guys!
Sometimes people do indeed connect here, and sometimes just at the right moment. I don't know why this happens, but I have been witness to the same thing. The icker I feel, the louder I go..you would think at the age of 60, I would settle some, not in this life anyway. Keep in touch. Let me know what you think about the rest of that CD. Joe's new CD is called "Driving Toward The Daylight" First cut is called "dislocated Boy" you will like it.
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Old 09-19-2012, 04:47 PM #13
Bob Dawson Bob Dawson is offline
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I shall feast on this music. Thank you.
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Old 09-19-2012, 04:49 PM #14
ginnie ginnie is offline
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Default Hi Bob

[Just read, and listened to the song. I will have my son down load it to my nook. Never heard that song before. I teared up. thank you. ginnie
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Old 09-20-2012, 05:55 AM #15
Bob Dawson Bob Dawson is offline
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Default r123

r123,
you are the light house on a dark and stormy night.
I almost called.
I will call soon and this time not let shaking hands mis-dial and get a wrong number in your neighborhood. Apparently they are sending me the pizza by Fed Ex, given the distance of delivery that I require
will be in touch as soon as the pizza arrives probably a day or two
We are solving the world's problems, one at a time
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"Thanks for this!" says:
soccertese (09-20-2012)
Old 09-21-2012, 04:39 PM #16
ginnie ginnie is offline
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Default Hi Bob

How are you tonight?. I have been listening to Dylan over and over. Did you get a chance at Joe Bonamassa? "Slow Gin" "Happier Times" "Ball Peen Hammer"Quarrymans Lament" "tamp em up Solid" are some of my favorites. Joe and Dylan, I pay for those CD's. Worth ever cent, even if you can listen on u-tube. Hope your day is goin OK. I had to prepare pre-op papers for my proceedure on monday. I get another upper GI, fun fun fun. Great doc. so it should be just fine. Did you crank up the music today? I did it when I filled out my paper work. Have a good night bob, rest well. ginnie
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Old 09-21-2012, 06:35 PM #17
Bob Dawson Bob Dawson is offline
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Originally Posted by ginnie View Post
How are you tonight?. I have been listening to Dylan over and over. Did you get a chance at Joe Bonamassa? "Slow Gin" "Happier Times" "Ball Peen Hammer"Quarrymans Lament" "tamp em up Solid" are some of my favorites. Joe and Dylan, I pay for those CD's. Worth ever cent, even if you can listen on u-tube. Hope your day is goin OK. I had to prepare pre-op papers for my proceedure on monday. I get another upper GI, fun fun fun. Great doc. so it should be just fine. Did you crank up the music today? I did it when I filled out my paper work. Have a good night bob, rest well. ginnie
What's an Upper GI? On Monday? Be strong. I need you strong.
I blasted about 2 hours of music in the barn, Tempest and some Mississippi Blues. Most of the day I was Off and I have this pseudo-catatonic thing I do where I am paralyzed from the neck down and I can't move, but then again I can move if I really have to or if I decide that I really have to. I look down and see my feet and they are not attached to me and I cannot decide for them what they will do, or if I can walk. But if I really decide that my feet are going to walk, they do, at least for awhile.
Music, slow motion movement, breathing as if I really like oxygen, reading things stupider than what I write so I can feel smug, and (everybody duck and roll right now), anger also makes it better. For me, that is. But I just do what I am told, and those in charge of mystical reformations have wisely decreed that it is necessary to Be Lenny Bruce - life is all true, but it is also very funny. I can sometimes go for hours at a time with that one. It just gives me more time in a day to be there, and it is less stressful because I am writing the script as I speak and I am not running for election, I am just finding a few spaces where the bad things don't matter so much because funny, beauty, drum-beat = heartbeat, I love you.
I can't ask for much more than that.
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Old 09-21-2012, 07:50 PM #18
ginnie ginnie is offline
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Default Hi Bob

Too bad these things like we have happen. It seems to happen to the very best of humanity too. An upper GI takes a tube down your throat into your stomach to look for cancer. It is my 4th. Every 4 - 6 months. I have barretts esophagus which is pre-cancer, and a host of other ____t. I can't swallow well, and have meds for the heartburn which almost never resolves. I will be strong, don't worry.
I do know about PD. I am loaded with auto immune diseases, 5 so far, I get angry too, and listen to blues in general all the time. Ever read Silent Spring by Rachel carson?. Well most of this stuff we get maybe PD too could be immune related. I watched my neighbor as a child, and was horrified at what it did to him. I never forgot. The disease is no fun, none of this stuff is and I don't blame you for getting angry. I am on my feet now, but I colapsed my foot due to three torn ligaments. Can't have the surgery to replair because of lovely RSD. I will be in a chair at some point too. For now I walk with a limp and just deal with all the stuff the best way I can. Making friends here for one. The site probably saved my sanity in more ways than one. I tell people last time I vacumned the house I looked for my marbles and never found a one. Keep in touch with me. I get scared with these upper GI's as they include biopsys each time. My doc. is great, and does have the ability to put me at ease. Listen to some of Joe Bonamassa if you can and think good thoughts my way on monday. We may have different disorders, but it is all lousy. a soul sister ginnie PM and I will give my e-mail to you.
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Old 09-22-2012, 03:22 AM #19
Bob Dawson Bob Dawson is offline
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thank u lots of times i cannot type and so i can\t answer fast or i tell the same story over again. so dont be disappointed in me as a pen-pal
i can give you my e=mail address too but don't get mad when i try to start world war three because i can't actually do that; somebody made that up; and
people get mad abuot things i say but i dont do bad things i just say sometimesthe wrong things or not approppriate to that awdience
people are not afraid of parkinsons but they are afraid of poeple who are out of their tree but IT IS NOT MY TREE i dont try to hide it much anymore andd they want me to be like i was 10 years ago but i was acting then not acting now and then they are mad that i used to be one person to them but actually i was somebody else; well it is also because they only let you be one way and i got too tired to pretend any more and so started to talk bout 2 years ago or 3 and i never shut up since so i am using up more than my share of oxygen and empathy and attentoin but it is jyst a phase i am going through and i dont know if i bel eive that either and so i keep writing stuff like this where it is all about me me me and myself and I and only a few people know how to change the channel, the rest of what i say is all like a late-nite infomercial for the electric vacuum that finds your marbles again
I put on this reassuring voice that these are friendly lost marbles and there is no reason to evacuate the neighborhood just because i walk down the street, you know. It's safe now, come back down from the hills ands return to your houses and lets agree not to tell about the general panic of the summer of '12.
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ginnie (09-22-2012)
Old 09-22-2012, 05:28 AM #20
Bob Dawson Bob Dawson is offline
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Default uh oh

[QUOTE= a faithful member of your house's support system for many years without complaining once,

Now, Bob, I could go on and on and on, but I am afraid I am already bordering on insanity.

michael[/QUOTE]

BINGO! We have a winner at Table 4
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