Parkinson's Disease Tulip


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Old 12-21-2015, 08:23 PM #1
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Default Thelma & others

I did well - very well. IT WILL BE A SLOW PROCESS, but I hope to get off all meds (wishful thinking, I know) but it has been done before it just takes time and tenacity.

The final surgery was gory sounding - they asked me to not clench my teeth and it wouldnt sound so bad. it still sounded like a chainsaw massacre! What did I do during all ofo this? I sang! All verses of Just As I Am. It was 3 weeks before I got back to turn the programmer on - no dyskinesia! Slight tremor in each hand, but no twisting or writhing. no dystonia either. It's so hard to explain. It's like I was in somebody else's body. They arent finished making adjustments. It will take 3-6 months. but PTL!!

Thank you for your concerns and prayers. I'm 65 and have two holes in my head, but still hsve a brain. I love all ofo you - I really mean that!
Peggy
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Old 12-21-2015, 08:39 PM #2
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That's just wonderful news, Peggy! All the best wishes for a speedy and successful recovery! Happy holidays and a very healthy New Year.

Gary
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Old 12-21-2015, 09:51 PM #3
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So glad to hear that things went well for you!
Happy holidays to you, Peggy. 2016 will be a great year!
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Old 12-21-2015, 11:28 PM #4
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Peggy, I am so happy and encouraged at the news of your results! PTL, indeed! Why are we surprised when He gives us exactly what we need? Love you, Robert
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Old 12-22-2015, 02:01 PM #5
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Best wishes Peggy, I am really excited for you.
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Old 12-23-2015, 04:14 AM #6
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sending good vibes & hugs Peg !!
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Old 12-23-2015, 10:22 AM #7
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Dear Peggy ..so glad you got on line to report on the DBS . Can't wait to see you in your new body.( We'll all have one someday.) Glad you got yours here and can enjoy it right now. God bless you. Have a wonderful Christmas...and the best new year ever!!!
Love, Aunt Bean ( and the rest of your fan club world wide)
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Old 12-25-2015, 01:57 PM #8
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Default Great news!

Quote:
Originally Posted by pegleg View Post
I did well - very well. IT WILL BE A SLOW PROCESS, but I hope to get off all meds (wishful thinking, I know) but it has been done before it just takes time and tenacity.

The final surgery was gory sounding - they asked me to not clench my teeth and it wouldnt sound so bad. it still sounded like a chainsaw massacre! What did I do during all ofo this? I sang! All verses of Just As I Am. It was 3 weeks before I got back to turn the programmer on - no dyskinesia! Slight tremor in each hand, but no twisting or writhing. no dystonia either. It's so hard to explain. It's like I was in somebody else's body. They arent finished making adjustments. It will take 3-6 months. but PTL!!

Thank you for your concerns and prayers. I'm 65 and have two holes in my head, but still hsve a brain. I love all ofo you - I really mean that!
Peggy
Sounds like you"re doing just great. Like to pick your brain (no pun intended) sometime in the coming weeks. Im going for a DBS consult around the end of Jan and it would be good to hear from a trusted source about the ordeal.
Merry Christmas,
Scott Suffridge
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Old 12-29-2015, 09:18 AM #9
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Quote:
Originally Posted by ScottSuff View Post
Sounds like you"re doing just great. Like to pick your brain (no pun intended) sometime in the coming weeks. Im going for a DBS consult around the end of Jan and it would be good to hear from a trusted source about the ordeal.
Merry Christmas,
Scott Suffridge
Yes, Peg. I wish the best results for you.

I also thank Thelma for posting about Peg. While this forum is about scientific and medical aspects of Parkinson's, as PWP we must remember that all of us are people with Parkinson's, yes, but we are also people with talents, humor. concerns, hopes, etc. I miss the social interactions that this forum once provided. It is rewarding to hear about and from Peg the person along with Peg the person with Parkinson's. Her personality shines through in her posts.

Years ago, a thread compiled short autobiographies from posters. It made the
forum supportive, informative, and enjoyable. Just saying.

Ann
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Old 02-25-2016, 10:42 AM #10
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Default Peg, any further news? DBS?

I haven't seen any recent updates on how Peg is doing after her DBS. Any news?

My wife has an appointment at MGH Boston, Movement Disorder clinic in late March.
She is not doing well at all and I think tweaking the meds is not enough. The neurologist that she will see does DBS. However since she is tormented by hallucinations/psychosis (sinemet related, she takes over 1300mg Carbo-Dopa), I am not sure if she will qualify for DBS.
Is anyone in a similar situation and did DBS help if it was done?
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