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Old 04-05-2010, 04:43 PM #1
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Sleeeepy Sleeeepy is offline
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Join Date: Mar 2010
Location: Pennsylvania
Posts: 18
15 yr Member
Post Need input...neuropathy type?

For those of you that have had neuropathy for awhile, maybe you can shed some light on types of neuropathy you have. I have undifferentiated connective tissue disease(autoimmune disease of some kind) and I have been sick since I was 19 starting with death defying/painful IBS. At age 27,after the c section birth of my daughter, the symptoms began -weaknness in limbs, gland problems, dryness Everywhere, pain in my feet upon standing in the morning after getting out of bed. Most Doctors though I was a complainer and brushed me off like I was CRAZY !! LOL All autoimmune blood tests are negative, but have all the symptoms. Major Neuropathy pain started in my face about 2 years ago after a major infection in my face after a root canal in a tooth went horribly wrong..talking about pain ...OMG...I practically screamed for my meds while in hospital. Well here we are two years later and the neuropathy has gone from numbness to pain in various spots in my face and jaw...gums and teeth..dentist thinks I am crazy because he can't find problem with teeth...says it must be nerve damage. Today for the first time I awoke from a nap on the couch and had this horrible burning pain up the back of my head from laying on it. The burn lasted for about a minute and went away. Also when I bang my hand against something or press my hand down on something like when opening an edged item like a jar..I get nerve pain in my hand that lasts a couple seconds and goes away. This also happens when I accidentally stub my foot on something. This is not normal pain like others feel I know because I remember what that feels like...it hurts, but not like this. I have a feeling this neuropathy might be related to my autoimmune disease. I do need to ask my GP for a referral to a neurologist, just wonder if anyone knows the difference between the symptoms of autonomic..peripheral...small fiber..there are so many kinds and I wanna know something before heading to the neuro. I guess I will need an EMG and hopefully a skin punch biopsy to find out what the heck is going on..I am scared. Any input would be helpful..even an explanation of your pain. Thanks Mary
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