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Old 04-05-2010, 05:44 PM #2
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echoes long ago echoes long ago is offline
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echoes long ago's Avatar
 
Join Date: May 2008
Location: new york
Posts: 1,589
15 yr Member
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Hi I have sensory motor axonal polyneuropathy.

At one time within the first year of PN i had the exaggerated pain in my feet that you describe. When hitting my foot or stepping on something small like a pebble the pain was 10x what it should have been. As my feet became more and more numb that has lessened to a great degree though now its more of a delayed pain when i hit my feet or step on something though not as exaggerated.

My hands now are somewhat at the exaggerated pain stage though nothing compared to what my feet were.

Now my main pain is when i stand or walk and it feels like i have broken bones in my feet. that has continued to get worse over the last five years and is really limiting my ability to walk or stand for long. Then after my feet hurt for the rest of the night. i have really cut back on my walking the last year or so.

Back when i had the exaggerated pains in my feet my emb/ncs of my feet showed mild to moderate nerve damage and now they show severe nerve damage.

you seem to be moving from numbness to more pain which is the opposite progression of mine so i dont know how much help my experience will be to you.

That broken bones feeling in the feet is pretty bad though and nothing touches it. Amitriptylene, wellbutrin, lexapro, neurontin, lyrica, topamax, oxycontin, nothing touched it.

Not even when i was put under for an endoscopy, when i woke i felt the pain in my feet when i stood though no where else.
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