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Old 08-08-2010, 04:26 PM #31
dahlek dahlek is offline
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dahlek dahlek is offline
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Default I have to say differently?

I quit the first 'do nothing' neuro, and the second was going in super slow motion as to diagnosis. I sought a third opinion from an area teaching hospital? And got the head of the neuro dept! On a cancellation no less!
He looked at me, had me do the standard 'close your eyes' test, etc and immediately zeroed in on diagnosis [w/o telling me] but, ordered a battery of blood tests and f/u MRI's, X-rays, Nerve conduction tests [done by neuro #2's staff] and spinal tap. All came out to CIDP. Ruled out were 'West Nile', Lymes and a few other 'regional peculiarities'. By going the extra step? Being consistent in what I related, how I related progression and bringing all my prior test results with me to doc #3? I got DIAGNOSED! Now over 7 years later? I've received far better treatments and medical care than I ever expected!
I am saying this because? #1 I'd likely be totally incapacitated now or dead without the treatments & care I've received; #2 Never take NO for an answer-ask what if?what else?; 3# Sell yourself and your case to get second opinions if you can and as best you can! Now, that doesn't always mean going straight to the Mayo or wherever? Web up http://health.usnews.com/best-hospit...d-neurosurgery And find the best you can where you live!
Try this route? It just mite help you! Especially IF, [as in my case?] it's getting worse! What have you got to lose but your life? Hope and 's - j
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Old 10-26-2014, 04:31 AM #32
travellinbug travellinbug is offline
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Default Pins and needles in contact with clothes

I a 27 year old male and have been suffering from the exact same thing! Its been going on for 20 months now started all of a sudden as a burning back pain then moved down to my legs. I can't wear pants as I feel a 'Pins and needles' sensation and burning when I wear clothes!

How are you coping? Did you find a solution?
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Old 10-26-2014, 07:59 AM #33
Kitt Kitt is offline
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Welcome travellinbug.
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"It is what it is."
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Old 10-26-2014, 08:58 AM #34
Susanne C. Susanne C. is offline
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Quote:
Originally Posted by travellinbug View Post
I a 27 year old male and have been suffering from the exact same thing! Its been going on for 20 months now started all of a sudden as a burning back pain then moved down to my legs. I can't wear pants as I feel a 'Pins and needles' sensation and burning when I wear clothes!

How are you coping? Did you find a solution?
This is an older thread, there are some more recent ones if you search "skin burning" or "sunburned feeling". It is not a rare neuropathy symptom but it is certainly an unpleasant one. Half of my wardrobe is geared around days when clothes literally hurt. I had this all over my body a few years ago, it was agony, but it eventually shrunk down to just my left thigh. it is uncomfortable but bearable.
This is not to minimize your discomfort, but you may get used to the "pins and needles" feeling. It is a constant for many of us. The burning and pain are more problematic and members here use a variety of medications and supplements to cope.
It is definitely harder to deal with all this as a young person. You are at a time of life when everyone expects you to be strong and healthy. Are you seeing a neurologist?
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"Thanks for this!" says:
hopeful (10-26-2014)
Old 10-27-2014, 12:01 PM #35
zkrp01 zkrp01 is offline
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Thumbs up Maybe

HYi Sheltiemom, probably an unrelated story, but many years ago I had an allergic reaction to a medication named Ru-vert. I could not wear clothes as my skin was on fire. I was lucky as I knew it was a reaction and went to the ER and was given another med called Anti-Vert. Have you started anything new, or eaten anything new? Good luck Ken in Texas
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