Just a tip....my neuro says a lot of the 'spinal picks' I had did NOT help my small fiber neuropathy. He hates spinal needling....so, for what that is worth, your concern on SCS may be valid.

Dennis,, I have SFN,, and I have the same exact feelings as you do,, except I have it body wide,,, I understand what your saying about feelinglike your arm is being ripped off,, and any kind of breeze from teh Air Cond sets it off,, I have tried just about any med out there,, and even though it might be taking the edge off,, its just making everything worse in my opinion,, my guts are a mess,, and I dont know if its from teh meds or from the neuropathy

I got a steroid shot in my median nerve and my wrist feels very good....so apparently there is some inflammation there despite the negative emg.

Anyway, would a steroid shot help your situation, Dennis?

Cyclelops

One Dr. tried this 2 years ago. The shot worked for 1 hour then everything right back to the way it was. Very painful.

Dennis

My femoral nerve was severely damaged but we don't think it was severed entirely. It's been a year and it's regrown almost to my knee, if that helps (I'm 5'8").

peppermintpatty

Sorry, but I am not sure as to what the length or distance would be to regrow. Also did you have nerve pain and did it ever go away. I have most of my nerve pain in the upper part of my arm which seems to increase by the week.

Yes to everyones all post have been very helpful.

Thanks to everyones for all there replies.

Dennis

[I have several issues, cervical and my feet. I have anterial tibial disfunction. I had a cyst, removed, came back, and had it removed again. There were nerves involved, that were severed trying to get this thing out. I have had pain and tingling since post 1 yr. It is however getting better. It is real slow, but feeling is starting to return and its not as painfull. Touch alone made me jump at first. I truely think these things can get better in time. I hope your situation improves. I was really worried at first if I had made a mistake in doing the surgery again. Good luck to you. Ginnie :

My last suggestion is a nerve block of some kind, but, I assume they would have to redo it periodically?

Or, what do they do for surgery? Can they do some kind of block like that?

My thought on stimulators is they do just that, stimulate and you already have too much stim goin on.

Gosh, I feel so badly for you. I am so sorry you have to go thru this.....

I have scheduled my surgery, and am pretty scared about it....but, no choice, I guess.

When they did the last surgery since she was doing 3 different procedures all at the same time carpal tunnel, redoing the thumb base joint by removing the silicone joint and using my tendon to make a joint, and last but not lease trying to repair the transected radial nerve just above the wrist area for the second time. Since the first time did not take because of a 4cm gap between the nerve ends and the NeuraGen tube used only allowed the one end of the nerve the live end to grow a rather large neuroma at the tube end. All this activity in this area of my hand/forearm made the radial nerve very sensitive beside having work done to the nerve itself so this is why I needed the blocks before the surgery.

One hour before the surgery they came in and did a nerve block in my arm pit which made my whole arm dead which was for the 3 main nerves in my arm this lasted for 3 days after the surgery very strange feeling.

Several months after the surgery my PM Dr. gave me some blocks through the front of my neck. These blocks did not work so we stop doing them. All I got from them was a very sore throat. The block never heated by up to 5 degrees in my hand wrist area where the nerve was repaired like it is supposed to according to the Dr.

It has been almost 2 years that my nerve was first repaired and now 8 months since the last surgery and the top of my hand burns, numbing, tingling pain all the way up to my elbow. The upper part of my arm is always in pain no matter how many pain meds I take. Each week that passes it seem to be getting worst. I have my next appt with my PM Dr. next Tuesday I am going to ask him for a block like what I had before my surgery to kill the arm from my shoulder to my hand. I know I will have to wear a sling all the time but at least the pain should be gone. Another Dr. that I saw for a second opinion on a SCS felt this would be better than the SCS. The more anyone messes with my hand/wrist the worst the pain gets afterwards.

Sorry for the long answer.

In July I had a t12 fracture, my spinal cord was swollen and bruised. My bones are healed and now I'm just waiting for nerves to regenerate. I currently have B&B issues and i'm seeing docs to try to take care of that. I know a combination of nerves need to rework themselves and I'm wondering if regeneration happens one at a time 1mm a day, or each nerve 1mm a day??

I currently have a dropped right foot, my ankle has very little movement up and down. I have sensation/feeling in my legs all the way down to my feet but my calves and hamstrings have been reduced to very little.
Possibility of building muscles while nerves are regenerating??

I used to be in really good shape, healthy eater/exerciser, and now I just don't know what to do with myself. my doctors say I'm doing everything I can but its just that, that drives my crazy. PT 3x a week in the gym, acupuncture, massage therapy, workouts at home, walking (w/cane & AFO), eating well, electronic stimulation, therapy, research & thats about all folks - but I also need adequate rest. I feel really stressed about all of this and don't want to hinder any progress. Any tips?? ANYONE!!!


Thanks,
Lisa