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Old 08-22-2010, 08:49 PM #11
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smae smae is offline
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Originally Posted by Hermes View Post
Tom,

I've been struggling with neuropathy for 2 years now and they don't have a clue to what is causing. I went to Johns Hopkins in Jan of this year and they did MRIs, EMGs, more blood work than is reasonable, 13 vials of blood - I asked the nurse drawing the blood if she was going to leave me with any, & a skin biopsy. All normal. I was told all that can be done is to treat symptoms. I've been on 4 different meds and they work for a while and then it gets worse. I'm going to the JH pain treatment center the end of Sept to see what they can do. I share my experience just to let you know that I understand and share your frustration.
Been there, done that! When I went to Mayo Clinic, they took 19 viles of blood. Jeepers!
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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