Worry, or more likely concern SHOULD direct you to agressively seek and get all the right testing.... You can't worry about what you don't KNOW about?
So, be agressive in finding out WHAT you should worry about and then LEARN about it!
As as aside? When I was 'diagnosed w/cancer?' I had'nt had the biopsy results in yet ...but I started 'reading like a crazy person'! Until, I realized, that like neuropathies? There were soo many factors to consider that I couldn't consider any until I knew more about what to LOOK at! Once you can get your docs to zero in onto something? You can then FOCUS on the hundred or so neuro problems in your case. Panic and worry are definitely premature...tho your body is screaming RED ALERT! all the time.
You hurt, feel like what goes out w/the garbage or worse! But, GET MAD AND LEARN! Be your own detective and zero in on the 'cubbyholes' you think YOU mite fit into? It IS overwhelming at first? But, w/the right doc on the right tracks you will find some sort of satisfaction in the result...if you can help steer the diagnosis to that 'right' or near-right solution...
This is up in the 'stickies'? But start and take a gander at ALL of the neuro problems! It's a BIG list! Start w/the top intro's? Differences between Myopothies and neuropathies etc...testings and all of it!
Then? Zero in on some maybe diagnoses... Good luck and don't give up!
http://neuromuscular.wustl.edu/alfindex.htm
Hugs etc. !!!!!!!!!!! - j