I have experience with that and have also been diagnosed with Interstitial Cystitis. There has been some question over whether I have it or not, but then not much is clear cut with other issues that I experience either. At first, it was believed to be a urinary tract infection, but symptomwise, for me, the difference is that the bladder burns when it fills up, NOT when it empties, like when you have Cystitis and you dread going... When it empties, it is a huge relief.... Until you begin to be aware of it filling again at a certain point.

Get this: Urimax and Urelle, were most effective in relieving this pain, which can be miserable. Both have been taken off of the market. I am not sure why, but the pharmacist said it had to do with its affect on blood pressure.

For some reason, it also helped with the allover burning pain. Sooo... Here I thought my PN was getting better and my blood pressure was returning to normal range and I find out it is probably the bladder medication...
Go figure...
Cathie

P. S. One doctor told me that this can be present with various autoimmune diseases...