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Old 04-19-2012, 02:35 PM #7
Idiopathic PN Idiopathic PN is offline
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Location: Jacksonville, FL
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Idiopathic PN Idiopathic PN is offline
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Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
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Quote:
Originally Posted by en bloc View Post
I don't think 'when' you had the tests done will make that much of a difference, unless it was many months. Then you may ask for them to be rechecked...but don't be surprised if they are still negative, even if you have Sjogren's.

The Schirmer's test is a strip place just under the eyelid for 5 minutes to measure tear production. It sort of sounds like what you had done. But it doesn't sound as if they gave the you results. You may want to ask for the office notes from your visit to see his comments about this test...or whatever he did with the strip.

Of course, I have the typical dry eyes and mouth, but my neurological symptoms came very early in the process. I have numerous symptoms from Sjogren's...or from the neurological manifestation of it.

dry eyes & mouth
hoarseness
dry skin
gum disease and dental problems
iron deficiency anemia
joint pain
fatigue
PN pain(feet are the worst), but also neck and back and down back of legs
allodynia (both legs)
vibrations, and sensory loss in both legs
severe autonomic neuropathy (to include gastroparesis, balance, proprioception, BP, heart rate/arrhythmia, cardiac vasospasm, livedo reticularis)


You certainly don't have to have all these to have Sjogren's. If you think there is a possibility, then a lip biopsy might be best.
Thank you En bloc.

When I asked the staff how dry my eyes were, she just said, the right is more dry than my left. (That was expected because it was the right lacrimal gland that had inflammation and was operated on.)

Maybe they will use the "number" as the reference point in my next visit.
I am taking Restasis, Fresh Kote and Refresh PM. I used to take Thera Tears Supplement. Since the PN started, I changed to Omega 3,6,9.
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