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Old 07-07-2012, 08:11 AM #16
glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
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glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default This is why--

--the Internet has been such a wonderful tool for us--and would be for doctors, if more of them would use it. Sites can be updated as new information becomes evident (and places like Neurotalk are actually quite helpful in this regard).

I personally prefer to consult some of the large databases that I know are regularly updated. One of the best of these as regards neuromuscular conditions is the Washington University at St. Louis site, which is updated constantly, and even has a section where one can see these updates, complete with references:

http://neuromuscular.wustl.edu/

I've personally had experience with changes here--the celiac section, for example, has been significantly updated and revised over the last ten years as more information about neurological symptoms of the condition has become apparent (and I do believe some of the work JCC had done accumulating information for the Gluten File, as well as work done by the neurology researchers at Cornell-Weill, whom I know well, contributed to this).
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mrsD (07-07-2012), Susanne C. (07-07-2012)
 


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