[chalk14]

Hello folks,
I made an intro post on another thread and have been referred here since I think I may have PN.Its early to speculate,as I have an appointment with a neurologist next Thursday,and I'm hoping that I will have a clearer idea about what I am experiencing.For now though,here is a brief history of where I am.
About 4 months ago I found that the side of my left foot was becoming numb,this was quickly followed by numbness in my left big toe.Since then the right big toe and heel of my right foot have followed with the numbness.Sometimes I get a sharp burning pain when I move my arms and hands.fingers although this is variable and seems to move around or even disappear.The numbness remains however,and is coupled with some tingling sensations from within my toes.They feel like they are encased in wax which is more pronounced when I wear socks and shoes.Over the weekend,my left arm developed a mild sensations of pins and needles which seems to be receding although there has been a mild sensation in both arms for a few days.Parts of my hands and fingers are also developing a localised numbness although I have no weakness at all.My GP has referred me as she 'thinks' it is peripheral neuropathy but has no information regarding possible cause,treatment,duration expectation etc.So,my hopes are on the consultant next week.I have had numerous blood tests including for lyme disease,all have come back within normal limits,liver etc etc....Having looked around this forum in the brief time I have been a member I see that there are many people with more to deal with than I currently do,although I have to say that my symptoms are disconcerting and I hope to have some relief and answers soon.My lifestyle is that I eat well dont smoke get moderate exercise although I am on meds for hypertension,namely ramipril 10 mg and lercanidipine which has gone from 10 to 20 mg in the last few months....Anyway,thanks to all those who keep this forum going I am pleased to have found it as it is of comfort to know that I am not alone.

[villier]

Hi Chalk

Welcome to NT, I am from Scotland I had joined the forum a couple of years ago and forgot all about it until recently, I have posted a few messages and the information I have had has been great, it helps to know that you are not alone and there are a lot of people that understand how much pain you go through. I am sure some of the moderators will answer you soon I am still finding out about my condition so not clued up enough to suggest anything to you, hope all goes well for next week you can post your findings after you see the neuro. Marie

[mrsD]

Welcome to NeuroTalk:

Your blood pressure medication over time has been shown to deplete zinc from the body so it might be a good idea to take a moderate dose of zinc supplement daily. OptiZinc is the best absorbed, and not expensive. I don't know if it is available where you live. Another is Zinc Picolinate, which is more common to find. One a day is all you need. Zinc Sulfate is very nauseating and hard to tolerate.
http://www.umm.edu/altmed/articles/zinc-000999.htm

Secondly I'd suggest your get B12 tested. Low B12 creates all sorts of neurological symptoms.
Get your numerical result and post it here including the whole number with the letters of concentration. Different countries use different scales. And many doctors accept low results as normal, and that has changed and is no longer accurate.

There are other causes, but these two are the most likely to first deal with. If they do not work, then other supplements may help. It would be a good idea to get a tested for glucose tolerance and errors with it can also cause nerve damage.

Also make sure you don't have issues with your spine.
Heel pain can be tendonitis... and some people get this from using fluoroquinolone antibiotics. The tendon inflammation can occur months to years after. So check and see if you have had these drugs in the recent past.

Originally Posted by chalk14

Hello folks,
I made an intro post on another thread and have been referred here since I think I may have PN.Its early to speculate,as I have an appointment with a neurologist next Thursday,and I'm hoping that I will have a clearer idea about what I am experiencing.For now though,here is a brief history of where I am.
About 4 months ago I found that the side of my left foot was becoming numb,this was quickly followed by numbness in my left big toe.Since then the right big toe and heel of my right foot have followed with the numbness.Sometimes I get a sharp burning pain when I move my arms and hands.fingers although this is variable and seems to move around or even disappear.The numbness remains however,and is coupled with some tingling sensations from within my toes.They feel like they are encased in wax which is more pronounced when I wear socks and shoes.Over the weekend,my left arm developed a mild sensations of pins and needles which seems to be receding although there has been a mild sensation in both arms for a few days.Parts of my hands and fingers are also developing a localised numbness although I have no weakness at all.My GP has referred me as she 'thinks' it is peripheral neuropathy but has no information regarding possible cause,treatment,duration expectation etc.So,my hopes are on the consultant next week.I have had numerous blood tests including for lyme disease,all have come back within normal limits,liver etc etc....Having looked around this forum in the brief time I have been a member I see that there are many people with more to deal with than I currently do,although I have to say that my symptoms are disconcerting and I hope to have some relief and answers soon.My lifestyle is that I eat well dont smoke get moderate exercise although I am on meds for hypertension,namely ramipril 10 mg and lercanidipine which has gone from 10 to 20 mg in the last few months....Anyway,thanks to all those who keep this forum going I am pleased to have found it as it is of comfort to know that I am not alone.

[chalk14]

Thanks,I'll look at the zinc idea.I have been tested for B12 and was told that it was fine.I'll try to get the numbers from my GP.....

[mrsD]

You cannot trust "fine" as an answer to your B12 results.
The labs do not flag lows accurately. In the US fine can mean 240...which is very low. Until the labs catch up to new protocols, the patients will suffer.

So if you can get that numerical result including the concentration letters, and I'll convert it for you to US units.

[Sallysblooms]

Welcome. I have improved greatly from my Dysautonomia caused by Autonomic neuropathy/PN. Diet and supplements are what it took for my nerves to heal.

[4aulkner]

Originally Posted by chalk14

Hello folks,
I made an intro post on another thread and have been referred here since I think I may have PN.Its early to speculate,as I have an appointment with a neurologist next Thursday,and I'm hoping that I will have a clearer idea about what I am experiencing.For now though,here is a brief history of where I am.
About 4 months ago I found that the side of my left foot was becoming numb,this was quickly followed by numbness in my left big toe.Since then the right big toe and heel of my right foot have followed with the numbness.Sometimes I get a sharp burning pain when I move my arms and hands.fingers although this is variable and seems to move around or even disappear.The numbness remains however,and is coupled with some tingling sensations from within my toes.They feel like they are encased in wax which is more pronounced when I wear socks and shoes.Over the weekend,my left arm developed a mild sensations of pins and needles which seems to be receding although there has been a mild sensation in both arms for a few days.Parts of my hands and fingers are also developing a localised numbness although I have no weakness at all.My GP has referred me as she 'thinks' it is peripheral neuropathy but has no information regarding possible cause,treatment,duration expectation etc.So,my hopes are on the consultant next week.I have had numerous blood tests including for lyme disease,all have come back within normal limits,liver etc etc....Having looked around this forum in the brief time I have been a member I see that there are many people with more to deal with than I currently do,although I have to say that my symptoms are disconcerting and I hope to have some relief and answers soon.My lifestyle is that I eat well dont smoke get moderate exercise although I am on meds for hypertension,namely ramipril 10 mg and lercanidipine which has gone from 10 to 20 mg in the last few months....Anyway,thanks to all those who keep this forum going I am pleased to have found it as it is of comfort to know that I am not alone.

You also might think about testing for either celiac or wheat sensitivity since recent studies indicate there might be a connection between PN and an intolerance to gluten/wheat protein. Best of luck and keep us all posted!
Marcia

[Jenbear]

Hi Chalk

I was really interested to read your post as I've been having a similar thing myself - started with pins & needles & numbness in my feet & legs and now my legs are better but I have numb areas on my arm & my fingertips are hot and tingly. I'm quite active and although I managed a short run at the weekend the tingling sensations in my legs weren't pleasant! Blood tests were clear, I've been taking multi vitamins and have no loss of muscle strength. Seeing the neurologist in 4 weeks.

Just wondered how you're getting on and if you've seen the neuro yet?
I'm in the UK too btw