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Old 08-10-2012, 08:59 PM #4
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Sallysblooms Sallysblooms is offline
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Sallysblooms Sallysblooms is offline
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Join Date: Jun 2010
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I have Autonomic Neuropathy and PN. Dysautonomia-specifically Postural Orthostatic Tachycaria Syndrome. (POTS) Chronic Fatigue Syndrome also. It is VERY hard, I was so ill I could not sit up, barely was able to walk to the bathroom. Then, I got the right supplements from integrative MD's. I slowly healed. The nerves in every part of the body do not work so you get all of the symptoms. It is so scary, but working with diet and supplements to heal the nerves works for me. I am doing SOOOOO MUCH better! My family is SO happy. Hubby, parents etc. It has been a long haul, but I work hard to heal.

I was in a wheelchair for a while, now I can walk great. I use a scooter for really large stores. Otherwise I can feel like fainting.

I know it is scary. Finding great doctors is important. You can go to Dinet.org to the forum also. Learn about dysautonomia. Most people live with it and slowly get better. You have to learn all about how to heal the nerves. Most reg. doctors have no clue how to do this.

Is your blood pressure OK? Sometimes it can get very high or low.
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