How is everyone doing? I have still have tingling in hands and feet and sometimes in my cheeks and lips. Aches and pain in my right arm and shoulder too. Anxiety does make it more intense so doing my best to get that under control.

tingling followed by pain
 

I have pain in my left elbow and deltoid plus my hips again with a slight headache in my left frontal part of my head. Gonna visit the doctors

Tobius - hope you feel better soon. Let us know what the doctor says.

Quick Update regarding my wife, we received great news in the form of a clean EMG test results. Nerves are healthy and operating properly. No neurological diseases.

This plus the addition of Gabepentin has helped with the nerve discomfort. It has dulled down the twitches but they are still present and lead to the everlasting anxieties that come with it regardless of a clean bill of health.

Having read through a lot of this thread I am still curious how long some of your nerve twitches last for. We are 60 Days into this situation thus far, our neurologist chalked them up to be Myokymic twitches. Curious if anyone else had a similar diagnosis.

Thanks

Arose- that is good news but continuing symptoms are anxiety inducing. My symptoms are different -mainly tingling but lots of people on this thread report twitching and it does seem to take a while to resolve. Hopefully, with time, your wife’s symptoms will improve. Best wishes

Thanks for everyone’s well wishes. I imagine most people who have had a full recovery have moved on as previously stated as we all wish to join.

We may not know the full timeline of everyone’s recovery but feel free to chime in if you have had a near 100% turnaround.

I pray for anyone and everyone dealing with an ailment or difficult symptoms. I know it’s easy to lose faith in your improvement as you’re going through hard times. Positive energy towards recovery and a wonderful Thanksgiving to all.


ARose

Verorab ruin my life
 

hi I was vaccinated with 5 doses of verorab vaccine in august. since then my life is literally in ruins. I have a throat neck, a stiff neck, brain fog, headache, joint pain, hand and a shoulder that burn me incredibly. I have erythems in my armpit. it was all after vaccination. I've never had such problems before. I already think I am not getting rabies and not dying. I have unreal depression. Have you encountered anything similar?

So sorry to hear what you are going through. Have you consulted a doctor?

ARose, wish I could be more help with a time line. There were so many side effects going on with me that I don't recall exactly when the twitches stopped. (My neurologist called them myoclonic.) I do know however, that the myoclonus was one of the first symptoms to clear. This Christmas Eve will mark three years since I was bitten and had the post exposure series. I am doing very well. Hoping and praying the same for your wife and everyone who has ever had a brush with possible rabies and reacted to the vaccine.

Hi eliLake, hopefully you do have a trusted doctor to consult on this. A lot of it sounds like vaccine reaction, but there is also the possibility that one or more of the injections to your deltoid may have done some nerve damage. Keep us posted on your progress. :grouphug:

Hi eliLAKE

Welcome to NeuroTalk :).

I am sorry to read about your response to Verorab.

As far as I can see its standard immunisation schedule is three (not five) 1 mL doses on days 0, 7 and 28.

Rabies Vaccine BP - Summary of Product Characteristics (SmPC) - (emc)

This and other information in the link could be worth discussing with your doctor.

All the best.

In my country, standard immunisation schedule is five Verorab shot on days 0, 3, 7, 14 and 28. I have little delay because kitten look healty and bite is provoked. And all times i have bad reaction like insomnia, muscle aches, frequent urination, stiff neck, headache, low body temperature max 35.6. And now after 4 month i have tingling, stiff joint on hand, burning hand, arm and back. My doc think i am crazy, send me to psychiatrist.

**

And i have this erythems in my armpits. Appeared 6 days after the last shot in august and it's still same.

Per your provided link, the pre exposure schedule is three doses, the post exposure schedule is indeed five doses.

Have someone symptoms like me? Iam so scary.

EliLAKE, I hope you have found help. There are so many things that can happen with vaccines and pharmaceuticals. Erethyma may be a sign of Stevens Johnson Syndrome. Please keep us updated. Just because you received no replies does not mean the community is not thinking of you. We're just at a loss. I don't think anyone on this thread has reported erethyma.:hug:

3 years
 

Christmas Eve again, three years ago I was bitten by the bat. Just checking in to let everyone know I'm still here, and I'm doing well. Peace.

Hi Dears,

I live in India, Bangalore. I was bitten by a 6week old pet puppy on my left foot. It was a very small incision on my feet. Doctors had seen my injury mark and said no treatment required because the puncture was superficial. I had also washed with running water and put in Dettol(antiseptic). I however got anxiety issues and took the anti rabies vaccine 3 days later. As of Today I have completed 3 doses of Abhyrab vaccine and it’s been 4 days since 3rd dose is completed. Unfortunately I have no contact with the puppy since it was in a different city.

Last few days I had mild tingling/burning sensation on the sole of my feet. Both foot sometimes. No other symptoms. This thing is driving me crazy and giving me sleepless nights. I took multi- vitamin tablets for a few days and did not have the similar symptoms but kept feeling thirsty and hence stopped the Vitamin treatment.

I wanted to know if this is anti rabies vaccine and body acting up or this is rabies pronouncing loud and clear. Help me pls.

Three days is well within the necessary time frame to receive post exposure vaccine. Most likely your symptoms are neuropathy from the vaccine.

That’s relief for now. If possible I will post my progress if it helps others.

I do have a lower neck and upper back issue. Feel like stretching it always. It’s been a week now. I’m scared as well.

I've had so many health problems since I got vaccinated. until I don't want to believe it. my neck is stiff, I have headaches, hand pains, cervical spine. mental problems, literally my life is in ruins.

Wow I am mind blown to find this thread. Here is my story.

May of 2019 I found a bite on my wrist. Could not recall how it got there but it looked strange. I racked my brain but could not figure it out. Back tracked my last day and I was outdoors, in a home warehouse store that has birds and other things flying around in there. Still did not think much of it until day 2 when the bite marks got big welts around them.

My husband talked me into going to the ER to get it looked at and the attending said it looked very suspicious and I could either wait and see (hope it was not a bat bite) or get vaccinated. He said the wait and see part will not end well if it is a bat that had rabies. So that day I got immunoglobulin and imovax.

The first day I felt terrible. Flu sensations and to make matters worse, my son brought home a summer flu so I we both ended up with an upper resperatory infection and I almost got phneumonia. I felt terrible on the first day which was all the rabies shot. I started to get hot and feverish within a few hours, followed by the worst headache ever. Nausea etc. I felt better though the next day but shortly it was time for the next shot, and the same miserable feelings came with each shot worse then the one prior. When I finished the series I was happy but felt off. Along with the tremendous panic of being bat bitten and the potential of dying coupled with the shots I was a train wreck. I could not sleep, was amped up, full blown panic and insomnia. I could not sleep for almost 7 days. I would wake up at 4am every single night. I attribute 75% of this to the shots.

Anyhow In the months to follow I was feeling better and glad that was behind me. However in August I started getting tooth pain. I have had 2 root canals just over the past few months but they did not help the pain which tells me it might be some type of facial nerve pain syndrome.

Has anyone else had this after the rabies shots? I don't get any tingling in my body or the other symptoms you all describe. My main issues were through the course of the shots and seemed to improve there after other then this new thing. It could be totally unrelated but I worry about the small possibility of contracting a disease through the immunoglobulin and imovax. Prior to all of this I was a perfect image of health.

I don't want to scare anyone who is faced with being bitten. Please get the shot it can save your life.

Welcome
 

Glad you found us, and thank you for posting your experience. It is all helpful to this community. No experience with jaw pain. Hope yours is not related to the bat bite/rabies vaccine. I think we all will live with the shadow of "what if" after this. Yes I sure hope all the immune globulin donors were healthy...no way to know for sure.

Thanks Batbite. I also read your story.

I think everyone who has gotten these shots should as a precaution get tested for the basics, HIV, Hepatitis and possibly a few others.

I know they sterilize the donor material but the fine print on the brochure is of course scary. I did check for HIV months following the injections. I'm in a monogomous relationship for the past 28 years so no concern there but I think with this new pain issue I might test further. Just to be sure. Not to cause alarm to anyone. I reached out to the CDC and the makers of both vaccines and was assured they are cleaned but like everything in life there is no guarantee.

Yup...me too...
 

Virgin bride, virgin groom, married 47 years no infidelity, no illicit drugs, no blood transfusions. Yet here is this unavoidable risk because rabies is a death sentence if not immediately treated. I've had 3 ER visits in the last year for various reasons, and I think every time they do an ER blood draw they test for communicable disease. I'll have to ask my primary about that when we go in for our regular annual check up this Spring. Just have to continue to live my best life, the only direction is forward.

I think the risks are quite low so I don't want to cause any alarm. I am an over thinker so for me, I always am thinking of possibilities. There are online tests you can order yourself for blood work. I am to embarrassed to ask my MD - I got married in 89 to my soul mate so yeah there has been no infidelity. I may just order the tests if anything was wrong it would show up now in my blood work. They use a chemical that treats the blood. When you think of all the blood transfusions that are happening and the very small percentages who get ill off them I think it's the same concept. I have never received any blood or human biproducts in my life up until the shot. On the flip side had I not gotten the shot I would have counted down the next two years to see if I developed rabies. At least with the other diseases they are treatable. Rabies is the ultimate and most agonizing death sentence there is.

Hi Batbite, I hope I'm doing this correctly and you see this....I have read all your posts and am sorry to hear of your ordeal. My experience resembles a lot of the physical symptoms you had post vaccine. Mine was a very friendly stray kitty scratch and possible bite in October 2019. All through the shots, I had mild muscle aches and light headedness. This was on their 'mild side effects' that the vaccine could cause. No worries until 10 days post vaccine, the side effects didn't resolve. . Was told by the Health dept. side effects should have resolved....Well as you already know, this set the stage for pure panic/anxiety. Symptoms progressed to Muscle aches arms/legs, Sharp knife like nerve pains anywhere at anytime all over the body, face and head. Now 3 months post last shot, side effects continue. I have seen a Neuro who did feel there was a post vaccine reaction and to f/u if worsening. Blood work and physical exam were negative. The Anxiety and Depression can make it so much worse. Your posts have given me some hope that I too, given time, will improve. I do have some good days, but still have the dark ones. I will refer back to your posts to keep reminding myself there is hope. So thank you for sharing your story.

Hello, Pryjmak, and welcome. Without what I found on this forum when I was at my worst, the whole Rabies vaccine experience would have been so much worse. For whatever good it may do, it is my privilege to stay connected and "pay it forward." Even the medical "experts" are so varied on what they consider to be within the realm of possibility when it comes to vaccine reactions. So many say that any reaction should be over and done within weeks to months. Not so. The damage can take years to repair and heal, and I think for some people the damage may lessen, but never really go away completely. The human body is truly miraculous, and programmed to not only survive, but thrive. Do what you can to give your body the building materials it needs; good clean food and water, rest and exercise in proper balance, feed your mind and spirit good clean positive thoughts and energy. Be patient and kind with yourself. :hug:

Rabies vaccine
 

Hello everyone, I am experiencing some pretty scary symptoms that have taken over my entire life!! I received the 1st does on March 6 and two hours later I had numbness and tingling in my right fingers with pain in my right arm. This progressed to include pain in right leg and numbness and tingling. This later for about 7 hours, after those symptoms went away my left thigh became very weak and felt like it was extremely heavy this lasted all night. The next morning I woke up and had this tingling sensation on my right shoulder that went up into my jaw and finally I started to get a headache that felt like a vice grip around my head. I went to the hospital and they did a MS workup and found nothing. Didn’t know it could be due to the vaccine at the time. This all started because my daughter had two bite marks and we found a bat in the garage. Because of this prior to getting the shots I had two panic attacks one I had numbness and tingling in my legs . The second one I thought I was going to die from rabies because my right arm felt like a blood pressure cuff on it and that lasted off and on for 5 days and this was before I the vaccine. I don’t remember having any animal bites. My mother’s cat did scratch me back in October but she has her vaccinations and is an indoor cat.

Ever since then I get these symptoms that come and go, the numbness and tingling the muscle pain and weakness, General feeling of being unwell and on and off headaches that really aren’t so bad. It’s now starting to turn into small muscle spasms here and there along with my jerking when I fall asleep. I have had really bad insomnia the past couple days and my anxiety is through the roof! Also my throat feels like it tightening or sometimes it feels like something is stuck in it. I have one shot to go and I don’t know if I can do it! The throat thing is scaring me the most!!!

By all means! Let your Dr. know about the tightening in the throat! It could be an allergic reaction to the vaccine. You still need to complete the series, but ask about taking antihistamines before the final injection. I have severe allergies and the only way I could finish the rabies series was to take Atarax 40 minutes before receiving the last two shots. Other than that, hang in there and hope for the best. How is your daughter doing?

I will! These symptoms are really scary, especially at night! My anxiety still comes and goes and I’m wondering will it ever go away. I won’t say I have difficulty swallowing but it does feel different when I try to swallow like my jaw feels tight and my throat has a full sensation. My daughter is doing okay she only complains of bubbles in her throat, and feeling tired. After yesterday I just keep wondering if this will get any better or if it’s going to get worse. I almost went into the ER because the anxiety was overwhelming and my chest started hurting really bad.

Also how long did your flares last? I currently had one last night it started at around 10pm and then wouldn’t stop until 12pm the next day. It’s kind of calmed down somewhat. My back doesn’t hurt and the weakness feeling is gone but now I’m having some slight pain in my right tricep and some pain in my upper back. It’s really annoying more so now and not like the the flare I had last night.

Sometimes my flares with the neuropathy (needles and pins from the knees down) and my whole body vibrating went on for hours. A couple of times I sat up at the dining room table all night just trying to maintain, and nobody can tell me it was just anxiety. Anxiety plays into it, yes, but this was neurological. I won't review all I went through, it's all in earlier posts.

Recently, a month ago, My husband and I became sick. I don't know, and we will never know if we had Covid-19 as we didn't get tested. My husband ended up with pneumonia. We are both recovered without hospitalization. I only mention this because it was the first time I'd run a fever since feeling really recovered from my rabies vaccine episode, AND, while I was running a fever, the darn auditory hallucinations recurred whenever I was drifting off to sleep! Same thing...heard the phone ringing when I KNEW it was not, so there must be some residual effect. As you recall, my neurologist said the auditory hallucinations were small seizures in a part of the brain as I fell asleep, that triggered the memory of a phone ringing. Running a fever must have caused it to happen again. Since recovering, no more phone ringing problem.

It sounds as if you are having some serious side effects. I hope you recover as successfully as I did. Keep us all posted.

Hi Batbite, recently I have been having waves of anxiety with upset stomach. It’s been really scary. When did you notice your symptoms peak? When did they start to get better. I’m two weeks and 3 days from starting this and I’m wondering should I expect things to get worse before they get better.

I would say my symptoms peaked two and a half months after finishing the vaccine series, that's when the partial paralysis of the pelvis and left leg set in with a great deal of pain. I certainly hope you have an easier time of it. Wish I could sugar coat my story, but truth is, it took two years before things began to really turn around and improve. The good that came out of this whole whole episode is that it made me dig and become my own medical advocate. Genetic testing revealed that I am MTHFR compound heterozygous. I have mast cell activation syndrome. Both of these conditions impact my health and the way my body responds to toxins, pharmaceuticals, fragrances, topicals, and even foods. I've learned to keep healthy through avoidance of anything that could trigger allergic/neurological adverse events. Again, even knowing what I know now, I'd fight tooth and nail to get the rabies vaccine if bitten again. Risk/benefit...rabies = death.

Thanks for the quick response Batbite!! I notice that when the neuropathy and muscle pain leaves I get stomach issues like nausea and diarrhea. My doc gave me hydroxyzine for the anxiety and so far it seems to help really well so I can separate what is anxiety and what are my GI issues. I completely believe the anxiety is from this vaccine and not just me. I think 75% of the anxiety I experience is all due to the vaccine and 25% is my own anxiety contributing to it. I also have been having fast heart beat which I remember ATX-man having similar experience. I totally think the vaccine plays with your sympathetic nervous system too. Thanks for everyone that has responded because it has really helped me understand that these reactions happen more frequently than what is actually published in literature.

Hi bacc,

Not sure if you’re on here anymore but I noticed in one of your previous texts that you had a positive ANA and that you are taking hydroxyzine. Hydroxyzine is known for giving false positive ANAs on testing.

Cchines, thank you for that bit of information on hydroxyzine and false ANA positives. I did not know that. I always have hydroxyzine on hand to take as needed for allergic reactions, as it is not only anti-anxiety but antihistamine. I do not take it on a regular basis, only in the case of allergic reaction. During the course of my vaccine problems, the neurologist did test my ANA, which came back negative. Thank you again for a valuable bit of information for future reference!

Hi Cchines, Batbite has been a great comfort to me after reading her story and how far she has come. I am so sorry you have been dealing with adverse side effects from the vaccine. I have posted my story a few weeks back. Now 4 months post last shot, I still have muscle aches, neuropathic pains from head to toe. Ongoing diarrhea. The anxiety has calmed down a bit.

But I too have THROAT ISSUES since 12/2019. Throat feels swollen/dryish and overall just bothersome. Started with a dry cough and seen by PCP who simply said it was a virus, to f/u only if I developed a fever...which I never did. To make it worse, the anxiety medications I was put on have listed side effect of (dry mouth) and these made my throat 10 x worse. I now have to control anxiety without meds.

I checked online concerning throat and anxiety can cause muscles to tense and this can cause the feeling of throat thickening. I plan on going to a doctor once the Covid-19 is no longer a threat. If you are on anxiety medications, this may be making the throat worse.

I use throat lozenges and biotene spray to keep throat moist, along with lots of water, ice chips also help. Theraworx is like magic to control muscle aches. If you follow up with a doctor on the throat, please keep us posted on the outcome. I have noticed improvement in my side effects and keeping a positive attitude has helped a great deal. Keep the Faith.