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Tuming in for Hope
Hi all how'av y'all been holdin. I hope its good :). Dont give up guys. Ive had a flare up a few days ago but I'm doing fine no biggie. And I am here to remind yall we can and we will make it. God bless.
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Thank you for sharing your experience, and may everything go well for you post vaccine. We all have a soft heart for stray and loose animals, but it is so important to remember that it doesn't take a bite, just a lick and broken skin. Thanks for the reminder.
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Nice to read that you are doing good. My case seems scary as of now. I have had mild loss of sensitivity on my limbs to a varying degree. There was occasional pins and needles and a constant worry that my limbs were weakening. I'm a 32 yr male of lean build. Muscles are just about minimum. A week after the last shot I noticed that I don't really 'feel' my muscles. I can control them and found no motor changes. And day before yesterday I found out that I'm not sweating enough. I live in Chennai and I used to sweat profusely. Now my arms and legs hardly do. My head and trunk seem to be doing better. I checked by standing in the afternoon sun for a while. I'm utterly scared. With no hospitals open and the lock out for covid19 I have no means of of getting tested. I consulted a neurologist online who suggested anxiety meds for 2 weeks. Came here hoping to find some answers.
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Hello I'm not even sure if I'm doing this right but I'll give it a try.
3 days ago I may or may not have been scratched by a coyote pup my own stupid fault but anyways i have 2 young kids at home and after I help the darn thing I started freaking out. I help the pup in a thorn patch so I have no clue of it scratched me or not. My friend who was with me Insists it did not and it was just cut up by the thorn bushes but either way the pup laid on my arms that were cut open. The doctors say that if it cleaned itself before I picked it up I could be at risk and it's best to continue with the series. I had my second one today 4 26 2020 an hour after I had a racing heartbeat and I felt very warm no temp but felt very warm. I went back to the er I was told to expect side effects every vaccine has them well I then developed diarrhea I have crohns so I'm use to that well I started to have a feeling of numbness in my right foot and hand and now I have a prickly feeling too.... I'm freaking out and wondering if I should even get the other 2 vaccines.... this has be scared to death... advise please because idk what the heck to do |
Hello LakynBerringer 90, glad you found us on this site, sorry for your current experiences. As Unbitten recently reminded us, broken skin and animal saliva = rabies risk. As unpleasant as your symptoms are, I'd follow the doctors advice and finish the series. Your Crohns complicates things for sure. Ask your doctors about the option of taking an antihistamine before your next injections, it is what got me through the series with my allergy problems. My heart goes out to each and every one who experiences these neurological side effects. It's hard. An awful choice between the side effects and rabies. I had a "mantra" of sorts going through 2 1/2 years of neurological hell, "Rabies is a death sentence." And there is so much to live for. This past March (2020) marked three years since I was hit with the worst of my symptoms, and I am fine, doing very well. The decision is yours, but I'd advise listening to your doctors.
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Thank you for getting back to me. My PCP advised me to go threw with the last 2. I talked to her for a good 30 minutes today. She said if I do end up with GBS it's not a death sentence. The rabies on the other hand is. She said most people who had GBS have normal lives like 95 percent plus. I got an anxiety med too. It's just scares me I have an 8 year old and a 2 year old and I dont want them to be without a mother. I have never had a reaction to any vaccine before like this. I have got the flu vaccine for mang many years and nothing. I'm just so scared I go back for the 3rd one on the 30th. Plus i was told a week ago my crohns is attacking my vision just very stressed at the moment.... i want to live life is so beautiful. I love my kids they drive me crazy at times and I've said to myself I wish I could go back and change having kids but I dont mean it and I'm so terrified I may leave them without a mother or I may end up paralyzed... God help me is all I can say.... drinking my usual 1 gallon of water a day taking my normal vitamins.... and praying....
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I just feel like I'm waiting to die from all of this... like it's going to have a very bad outcome...
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Wish I could give you a big hug. I have no idea how Crohns would factor in to this. Vaccines do mess with the immune system. Does your Dr. Know you drink a gallon of water a day? Do you watch your electrolytes? That's an awful lot of water. Please keep us posted here. I know the fear is an awful thing to deal with. I'll be keeping you and your family in prayer. I personally know two people who came through GBS and are now doing fine. One has just a small residual facial paralysis, and the other went on to have three healthy children (one set of twins!)
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I go for my 3rd on the 30th. I will definitely write back. Like I said I talked to my PCP she told me to continue them unless with the next one stuff gets worse with my side effects but she said after the 3rd one i might be good? But she cant guarantee that like any doctor would say. She said after the first injection she had people quit. I want to try to continue i just hope these symptoms dont last. I want to be there for my kids. God do I love them. I have drank that much water for so long now. It helps me I feel. I had a blood clot behind my placenta with my son so I drank and drank and drank to try to get my body to absorb it and miraculously it did. Thank the good Lord. Have you heard of anyone having symptoms like this batbite24 and them being fine after the series was done?
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Yes, me. With each injection I felt spacey, hot, flushed face, really weird sensation in the palms of my hands...tingling, and for some reason like I had large steel spikes through my palms, prickling in the soles of my feet, left hand warm, right hand like ice, racing heart, sweaty palms. No headache, no diarrhea. After the second shot when the nurse nurse saw my red face, she too, was concerned about an allergic reaction. That's when my MD suggested the antihistamine, and the infectious disease Doctor concurred. I took a dose 30-40 minutes before receiving the next two shots. It also helped with anxiety. I don't think any two human beings are genetically identical, really, and we all react differently. As I said in previous posts, my husband had the series too, and other than some fatigue short term, he was fine. I was quite the mess for 2+ years, which is just what my neurologist predicted when I ended up consulting one and having EEG tests, etc. From the various posts, you can tell it took people varying lengths of times to recover if they had adverse reactions. There's just no way to accurately call it as to what will happen.
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My husband is going for a walk to see if he can find any of the pups out. He said he hates seeing me like this. Can you tell me a little about your experience with this? My pages wont load right batbite24
I'm sorry if I'm nagging or being annoying I just cant believe how scared I am..... |
I had diarrhea and an awful headache after. Within the first 2 hours. I got told by the one ER doctor that I'm not going to have any type of reactions to this series of shots until after the last one and he said if its going go to be bad it's going to be bad.... that scared the hell out of me.... still does
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Batbite24 does trippin2 ever chat anymore? We would be about the same age. I'm a 29 year old female from PA. Just wondered. I have no one to talk to about my problems. Everyone tells me I'm crazy or oh be quiet you will be fine. I know my anxiety ays a terrible roll. As soon as I set down my mind wonders and way overthink .... I have the tingling and pins and needles feelings in my feet and fingers but my anxiety is making it all so much worse
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Batbite24 when the people you knew had GBS did their legs feel very heavy? I woke up at 330 with my husband and I had to get up at 430 so I just stayed awake. I felt fine when I woke up laying in bed no tingling no pins and needles but then idk I thought what is going on and I've been having a panic attack I think. It's now 530am.... idk I'm trying to be positive but its wearing off I'm thinking about getting the 3rd vaccine and stopping. This is absolutely terrible. I dont want to die....
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No, it wasn't a matter of "heaviness" in the legs. It was very rapid total paralysis spreading from the feet to the head. Both literally fell down on their faces unable to stand and were brought to the ER just in time to be intubated. I don't think anyone on this forum had GBS as a complication from the rabies vaccine. One of the cases, my husband's cousin, had received the Swine Flu vaccine back in the day, the other was a young lady from our church about five years ago, and I have no idea whether her case was vaccine related or not. Pray, keep in touch with your doctor for making decisions, and let us know how you are doing please.
Re-reading your last post reminds me of some of my journal entries when I was going through it. Deep in the wee hours of the morning, sitting at the dining room table writing because I just didn't know what else to do. Insomnia and anxiety were definitely experienced by many of us. |
At the PCP now they are going to decide what to doom very scared. My legs feel so heavy I can barely walk I'm trying to tell my mind to just move and it's getting hard
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How long after the vaccine did the GBS cause paralysis? I just sat with them they think I am having a reaction. They want me to get the 3rd one and if I have more of a reaction then I can not get the 4th. She said if GBS is going to set in then it will be within 4 weeks from the first vaccine. She also said they typically see more GBS with infection weather it be viral or bacterial. They want to keep monitoring me. I told them I have a terrible ringing in my ears too. I don't know if it's just from the stress or what. I feel so stressed it's not even funny. My body just feels so drained because of my thoughts.... when I di the call on Friday if everything is the same or worse what should I tell them? I have never been three this before.... idk... when i held the coyote pup it didnt scratch me it kinda just hung out there I had 2 thorn scratches and a few small ones on my hand the pup laid against them but I just looked at the picture that was taken by my friend and it doesnt even look like the pup touched them.... I'm putting myself threw hell and in the picture it doesnt even look like the pup touched any of the scratches..... idk I'm having a very hard time with all of this..... I included a picture im.so stupid truly am....
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Hi, I've been through a similar path very recently and I think our anxiety does play a role is making things worse. True, our symptoms are scary, but be assured that nothing adverse will happen to you. It may be a long road to normalcy but I believe, we'll be normal in due time. Fight your fear. Indulge yourself in your family so much that you won't be reminded of anything related to the vaccine and its notorious behavior. I too had heaviness in my limbs at times. Not sure if it was weakness though. Whenever u are in doubt, stand on your toes. Even if you can for a moment you are fine. Pins and needles came and went for me. I was sacred, very much, at each and every turn. Now, I began trying to get through my day as normally as I can and I started to believe I'll be alright. I give my regards to Batbite for the support she gives to everyone here.
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Hi Lakynerringer90. I am one of the many on this site who have had the vaccine and one of the unlucky ones who also had an adverse reaction. I had my series of shots back in November 2019 and while I didn't have the side effects you and Batbite have experienced ( I had muscle spasms/aches both legs and dizziness) after each shot. My exposure was a friendly fluffy white cat with big blue eyes, and in reaching out my hand to direct her to a food bowl (believed she may have been a lost stray kitty) felt a quick scratch to the back of my hand. I did wash it off/ f/u with my PCP and she didn't feel I needed the vaccine as it was (a scratch and therefore 'low risk'.. The more I thought about it, I got so scared, since I hadn't actually seen the strike, what if it had been her fangs? So I decided to get the vaccine. Fast forward, within 2 wks after shots were done my side effects worsened ...diarrhea, muscle aches legs and arms, sharp stabbing nerve pains from head to toe at intermittent times as well as ice pick head pains. The worst part is the anxiety and depression. Now 5 months out I've noticed lessening of symptoms. As Batbite said, everyone who goes through this has a different timeline on how long it lasts. You are very young and I pray and hope that once all the shots are done, you will recover quickly. And the biggest thing here is to stop blaming yourself, going over and over what you should or shouldn't have done. Believe me, in the beginning I did that many times. Keep us posted on your recovery.
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Cute coyote pup! I can see why you wanted to help the little guy out! Don't blame or come down on yourself. Hindsight is 20/20 as they say. We have an American Indian Dog and people often ask, "part coyote?" Definitely not, all domesticated Pre Columbian domesticated dog lines from a Sioux breeder. Back on topic, as you can see you have found a supportive community. We can comfort and encourage, but we all know there is only one way....forward, one foot in front of the other one day at a time. I think we've all found that the more time passes, the anxiety slowly ebbs too. Hang in there and we'll be watching for your updates. If you and your doctors decide to cut the course short, ask if they think doing an antibody titer at some point will tell if you have mounted enough of an immune response. That may go a long way to peace of mind.
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I'm going to the ER a bigger one. I cant take this anymore I feel I'm having a mental breakdown. The base of my skull hurts so bad my neck hurts I'm having terrible muscle spasms the ringing in my ears is worse than before I'm terrified.... I really am....
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Prayers. Hope to hear from you soon. Did you get immune globulin along with the rabies vaccine?
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It's just seems like everything I do is taking more concentration.... I've never felt like this before in my life. The ringing in my ears I dont like..... its scares me..... I feel like something bad is going to happen I know I keep saying that but I'm scared..... I was told by the er doctor to keep drinking 1 gallon of water a day as by my PCP. The er doctor listened to me yesterday he said he knew I wasnt crazy he said I need to get the 3rd injection. And then titters and not get the 4th at all. He said there is a .1 percent chance of people ending up with neurological problems and he said I happened to get them.... but he said I'm alive right now so he doesnt feel I'm going to die or become paralyzed.... he said vaccines are not dangerous in the sense that they can save people he said on this hand rabies is 100 percent fatal. I'm not sleeping to well even with the concoction they put in my IV I did come home... if after the 3rd vaccine I feel like this again I will go back and say I want testing done.... well feel like this still or worse.... I just hate my life at this point I dont want to live like this .....
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Hi, i am new here and very happy i found this forum. All of the info are very helpful for me.
I have completed the 4-shot a month ago. I noticed some weird pain only after the 2nd shot but still managed to have the shot completed. After 1 day of the 2nd shot, i happened to feel sharp shooting pain around my right wrist at night (the 2nd shot was on the right upper arm) then it started getting worse by spreading up to my elbow and towards my upper arm and sometimes upper chest area. I can also feel the sharp pain at bitten finger (on the right hand). What is weird is the pain always get worse at night time where i have to wake up every night. Just wonder anyone experience the sharp pain here? Thanks for those who are very caring here, the forum really made my anxiety gone. |
Hello Allena, yes, I along with some others had shooting pain. Mine was also at night, waking me up. Glad the forum has been useful for you, and thank you for posting.
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How is your condition these days? Thanks for being such supportive so far. I pray for you and others who still suffering. |
Allena, I am doing very well these days. I sleep well and have no residual neurological effects from the PEP. I am very, very thankful and do continue to pray for anyone who has an experience with rabies/rabies treatment.
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Last night it hit me hard again. I felt stiff and sharp pain around the bitten finger and palm area. I wish it is gone away from my life in no time! Cheers to everyone |
I suddenly started feeling like I am dying. This kind of thing has gone for awhile until i happened to get a few more weird pain at some part of my body. Just now, it happened at my lower back for a minute.
I never had sound sleep for a while now. I miss those old time. I totally hate that it affects the mental health too! |
hi everyone! I got scratched deeply by my cat last february 16 and received PEP. He also did try to bite me, there were small wounds and I wasn't sure so I pointed them to the female doctor who was on duty in the ER. I was going to give him chicken and he went for my hand.
FI completed 5 shots plus ERIG (on day3 because at that time i felt like I was categorized wrongly by the male doctor) even if I told the doctors I completed a series of 4shots from Oct-Nov 2016.. Now I feel like I was over vaccinated. Should have known better. Anyway just as May started, probably the 3rd day or so, I felt the back of my left hand felt like it was burning. And now its the 7th of May my left wrist feels like it is burning. :( My anxiety is not helping. Plus my parents thinks my cats are a nuisance because of what happened so I can't easily open up to them. Good thing I came across this thread. Hope someone who had the same symptoms can help! |
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Guys, I haven’t posted or been on in several months as things have been quite positive for my wife’s symptoms.
To refresh memories for the newcomers, my wife had received the PostExposure and 2 rounds of rabies vaccine in OCT 2019 and within 24 hours had severe twitches, nerves pain and paresthesias ( pins and needles) they waxed and waned for about 3-4 months. We did all the tests with best neurologists in town (HOUSTON mind you so we have the best healthcare available) we did physical exams, EMG, deep panel bloodwork, MRI of brain and spine. Ultimately everything was negative and no signs of Neuro issues according to the data or consensus from the doctors. Over the last 3 months or so, she really turned the corner physically due to primarily holistic methods. A strict schedule of natural whole food vitamins, mostly vegetarian diet, and activity 5 days a week, Pilates, strength, waking or running all benefiting her twitches and nerve pain drastically almost eliminating them down about 85-90% in comparison. With the symptoms dropping then the anxiety and stress levels also dissipated. When this began she had vivid acute pain and twitches about every 2-5 seconds and it decreased tremendously in volume and frequency to maybe every 5 minutes or longer to the point of her barely noticing anything at all. All of a sudden on Monday 5/5/2020 a tad bit of regression. Her left calf and shin area tightened up drastically, exhibited some heightened muscle twitches and pain all over again. Unfortunately this has led to some physiological regression as well as we are having a level of defeat once again that this is more than the “ adverse reaction” doctors are telling us and possibly a neuro issue such as MMN or CIPD that has been discussed on this forum prior. We’ve made a follow up EMG appointment with neuro in a couple weeks as this has been a 9-10 month situation thus far. I am holding our hope that it was just a flare up as her calf has seemed to calm down already since Monday but the anxiety and stress fallout is apparently. I’ve done a quick scan through this thread with some interesting questions below with the hope that you all can help me answer. I am simply trying to find a baseline of where we fall according to your data and results. Please help wherever possible, desperate for answers and info. Thank you all! Bacc posted leg twitches on 11-11-19...update? How long have the twitches been going on for? Batbite post 3/25-found to be MTHFR compound heterozygous, mast cell activation syndrome..... have you considered genetic testing? Anything else you can tell us about your situation and data/tests? Unbitten April 12-reported twitches-I would like to find out for how long and where your twitches are? Lakyn-post 4/28-terrible muscle spasms 29 yo female after 2nd shot like me! What’s your story, what have you done to overcome this. What are your Doctors telling you? Fee free to private message if you prefer. All the best |
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