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Old 09-03-2012, 12:45 PM #11
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Wow..that is expensive!

Keep us in the loop however, and also see if you have import problems etc.
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Old 09-03-2012, 12:54 PM #12
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Quote:
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Wow..that is expensive!

Keep us in the loop however, and also see if you have import problems etc.
Namenda and Lyrica cost me $120 a month
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Old 09-03-2012, 01:42 PM #13
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Namenda and Lyrica cost me $120 a month
That is different. This is a food...a supplement, not a drug.

They are just going for the desperate factor.

Things from Europe as a rule are much much less expensive than US RX drugs. The same drug in Britain or France can cause up to 10 times less than it does here.

Type in "does Normast work?" there are various other sites to read, including the customs problem.
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Old 09-03-2012, 01:50 PM #14
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That is different. This is a food...a supplement, not a drug.

They are just going for the desperate factor.

Things from Europe as a rule are much much less expensive than US RX drugs. The same drug in Britain or France can cause up to 10 times less than it does here.

Type in "does Normast work?" there are various other sites to read, including the customs problem.
Can you link the sites that talk about customs issues?
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Old 09-03-2012, 02:08 PM #15
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Can you link the sites that talk about customs issues?
I will send to you in a PM. It is against guidelines to post to other forums here. Just in case... So I'll PM you.
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Old 09-03-2012, 06:19 PM #16
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thanks for the links
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Old 09-03-2012, 11:45 PM #17
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Watching with great interest. I have been interested in Cannabinoid receptor 2 (CB2) agonists for some time and feel that route will be very effective for neuroinflammation/neuropathy. If you get the normast, please keep us posted on your experience with it.

Also, please keep us updated on the low dose benadryl.

Thanks.
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Old 09-04-2012, 09:15 AM #18
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While waiting to hear back from my Doctor I was trying to get some additional background on Dr. Jan M. Keppel Hesselink and his clinic.

I'd like to get some of your feedback on this. The link and translation below about the Clinic looks homeopathic in nature although they do prescribe Prescription meds as well. I am not sure how it works over there in the Netherlands. I want to remain optimistic but anytime I see Chiropractor, homeopathic, and other words pop up I become cautious and very weary of their claims
Dr. Jan M. Keppel Hesselink presentation in one of the earlier posts in this thread sounds legit. So I am still optimistic about this potential treatment for neuropathic pain.


My browser has a button that translated this from Dutch to English. Not sure if its IE9 or google toolbar that did it. I will post the translations to each link. So I will post the translation after each link for those who may have difficulty translating them.

About the Clinic

http://www.neuropathie.nu/afspraken-...n-consult.html

*translated quote edited as that site has copyright*
Quote:
© Copyright 2012 Instituut voor Neuropathische Pijn. Alle rechten voorbehouden.

Last edited by Chemar; 09-05-2012 at 04:02 PM. Reason: © Copyright
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Old 09-04-2012, 09:42 AM #19
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Interesting.

However, most of the information I could find about PEA (Normast) comes out of the company that makes it. It appears to have moved from Italy to Netherlands since I looked at it last.

I searched this product a year ago...it has been around for a while. Some of the research goes back to 1960.
The information you are bringing to us, is newer therefore.
http://neurotalk.psychcentral.com/post763063-2.html

The PEA discussed in the video is not homeopathically dosed.
Homeopathy uses highly diluted (almost to infinity), of active substances including poisons, to trick the body into wellness. It is more common in Europe, and can be controversial and strange.

Taking dilute lead and arsenic never really appealed to me.

You are a great resource here, Bent. Good searching!
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Old 09-05-2012, 03:37 PM #20
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Default Normast

Today's post talks about a product, supposedly for neuropathy, that is promoted and sold from a source in the Netherlands. It's called Normast and it seems many people across the world, especially in America have been persuaded to buy it in the hope of helping their neuropathic problems. The website will try to persuade you by using incredibly complex language, that it's based on good science and research but in fact it's nothing more than (at best) a homeopathic product, with less than 1% of the palmitoylethanolamide it claims underpins it. the Dutch authorities have refused to give it a license as a medicine and for want of anything better, only allow it to be described as a food supplement.

You can look up Normast on the web and you will probably see links to a dutch website and one run by Ergomax.

It is promoted by Prof. Dr. Jan M. Keppel Hesselink, who's self-proclaimed title of professor is not recognised by the Dutch authorities. He also claims to be a pharmacologist and medical biologist but is also not registered in the Netherlands. He also claims to be linked to a medical university in Germany, which is bankrupt and furthermore does not have him on their employment lists. The best anyone can establish is that he is an unlicenced acupuncturist.

He sells Normast through a company called Ergomax or you may see it sold from an Italian company Epitech.

The problem is that much of the information about neuropathy on the sites is true and in some cases helpful, as information. He also sells Alpha Lipoic acid and Acetyl L- Carnitine amongst others, which are legitimate supplements known to have helped some people with neuropathy. So, just as with many of this sort of 'preparations' for neuropathy, there is a half accurate story to convince the buyer that the promoters are genuine but there is absolutely no scientific evidence that Normast works.

The Dutch Association which investigates quacks and charlatans have roundly condemned this man many times and if you look on the various independent forums about Normast, you will see many complaints that people have lost their money for nothing. Mister Keppel Hesselink or someone known to him, writes his own questions and answers (all positive of course) for various forums and has many YouTube video clips (in broken English) which are based mainly on patient accounts.

Of course, everyone must make their own minds up about Normast but this blog feels it necessary to take the opportunity to warn people about likely disappointing results. Do your own research and you will probably reach the same conclusions.

*edit* i only include this tips because whenever you make claims and counter claims, you need evidence to back them up.

When people are desperate due to neuropathy pain, they will clutch at any semi-convincing straws but should be aware that there are many unscrupulous operators on the internet and should research anything claiming to be a 'new' cure or 'help' for neuropathy. If the top neurologists and pharmaceutical companies have failed to come up with effective treatment when all accepted medications have failed, it's highly unlikely to be found by a private source which tries to sell it to you over the Net.

Last edited by Chemar; 09-05-2012 at 04:03 PM. Reason: NO linking at all is allowed for new members as per guidelines
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