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Old 07-02-2013, 09:42 PM #4
ermintrude ermintrude is offline
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Join Date: May 2013
Posts: 9
10 yr Member
ermintrude ermintrude is offline
Junior Member
 
Join Date: May 2013
Posts: 9
10 yr Member
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Quote:
Originally Posted by Susanne C. View Post
If you are implying by the above that you have a hereditary neuropathy which doesn't seem to be in your family tree, well it happens.
It also happens that sometimes our family trees aren't what we think they are. My bio father, from whom I inherited this lovely CMT which is currently rendering my arms painful and practically useless was not my Mother's husband.
Do you or your doctor suspect a hereditary neuropathy? I have passed this down to two of my children, both of whom are symptomatic, one quite severely.
If it is hereditary you can drink in moderation because there isn't much you can do to it or for it. Please let us know a little more about what you and your doctor think is going on.
All the best, which would mean hope it isn't CMT!
He has no idea what's going on at this point. I have a very strange case. It looks autoimmune-related but it isn't (my blood has lupus but
I don't), I have extensive small nerve fiber damage to my everything but better motor nerves than a normal person, and I have some very odd symptoms, like neuropathic water retention. I also have a host of other neurological conditions preventing me from taking anxiety meds, or pain meds. Sorry about your CMT, Susanne, and thank you both for the advice.
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