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CIDP long-term prognosis

 
 
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Old 10-10-2013, 12:32 AM #1
mafaun mafaun is offline
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Join Date: Oct 2013
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10 yr Member
mafaun mafaun is offline
New Member
 
Join Date: Oct 2013
Posts: 2
10 yr Member
Default CIDP long-term prognosis
Hello, my mom has had CIDP for 6 years. She's no longer responsive to IVIg, rituxin, or prednisone. She feels that she will become quadriplegic shortly; she just keeps getting weaker. Where she lives, there are no neuromuscular specialists.

1. Does anyone know the long term prognosis of CIDP once treatments are no longer effective?

2. Has anyone tried any other combination of treatments that have been effective?

Any thoughts would be great. Thanks.
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