Debi, I am so sorry. You are always so cheerful. Many of us here have been abandoned by our neurologists- they hate prescribing pain medicine and realistically they aren't going to see us often enough to do it. They also tend to feel that since there isn't any treatment they can offer they are wasting their time and our money. If your PCP is willing to work with you on adjusting your medication for maximum relief that is probably the best way to go. Given your other issues there should be no question of taking your complaints seriously.

The future. It is easy to say try to live in the present and don't worry about what you can't control, but it is only human to think about what will happen if things continue the way they are, or get worse. You have been hit pretty hard with this, and your frustration level must be running very high. This has been sudden, which is much harder to adapt to than a gradual loss of ability like mine. Your experience with trying to do a little shopping raises the question- overall is it worth it to you to be more active, get out a little, shop, go to dinner, even if it means paying for it tomorrow, or do you feel better conserving your energy and keeping your days quiet and consistent? Only you can answer that.

I wanted to help a friend make pajamas for her children. I knew it would leave me pretty exhausted and sore, and it did, but I felt great about having done it. I would not have felt the same way about housecleaning, though that will have to be tackled, with a lot of help, in the next few days.

Honestly I think you may need something stronger, or more consistent if the pain continues to limit you this much. For something to think about with doctors there is this

http://www.healthcentral.com/chronic...hronic-illness

For thinking about conserving energy there is the ubiquitous spoon theory, which really helped my husband understand-

http://www.butyoudontlooksick.com/na...poonTheory.pdf

Please keep venting here, we care about you, you're so sweet! And take care of yourself. It is easy to forget how much extra work this time of year makes, even when you think you are taking it easy.
Bless you,
Susanne