You might try R-Lipoic Acid (RLA), especially since your PN has been dxed as being diabetic. If that helps, try adding Pantothenic Acid (vitamin B5).

http://www.diabeteslibrary.org/View....ntothenic_acid

Doc

Hi.
Nights r the worse for me! Like Syvonne, I have full body neuropathy. The only place I don't have it is the left side of my face. Not sure if the pain is worse at night or it is just that no one is around to keep my mind off it. I live everyday in a pain level of about 8-9. It's awful. I have had SFN for 6 1/2 years now.

I take cymbalta, tramadol and synthyroid. The cymbalta was what helped me with the burning pain. I also take krill oil, r lipoid acid, Coq10 and probiotic. I get IVIG which gives me some relief for about 7-10 days. I recently started Enbrel. So far not working. My sometimes I just feel like giving up on all the meds! I shutter to think what my pain my be like then.

For those who are using compound creams, what areas do you put it on?

Hopeful,
I use compound cream, Gabapentin 5 %. Lidocaine, 10 % and Compket 10 %.-- I put it spearingly on top of each foot, just over the joint, and a little on each wrists.-- I can use it 3 times daily, but usually I use it twice daily. I try to use it between doses of Lyrica, because the cream can be powerful.

Hopeful, is your underlying condition Arthritis? Mine is Vasculitis and Arthritis. The rheumatologist has me on Full dose of Methatrexate. The doc had switched me to Cellcept for a while, but the jointpain became worse, so I am back on Methatrexate.
I hear you have received IVGG? Has this been helping for you?
I am getting so desperate for solution. My doc mentioned to start Rituxan, but so far I am waiting to have some more tests like right now, a temporal artery biopsy.
Good luck to you.

ILLPN
Hi again, I just wanted to give you some information:

I got this from a local Neuropathy Support Network for here in South Florida. It is a web page, and there is a lot of good information.

www.NeuropathySupportNetwork.org

Here are 2 very good books you can order from Amazon:

"Peripheral Neuropathy" by Norman Latov, MD,PhD
"Coping with Peripheral Neuropathy" by ScottI. Berman, MD, CIDP

These books are full of information and support.

Ideopatic PN
Yes, I have heard of that compoun cream with some more igredience in it. A neurologist mentioned it to me. He said it is being manufactured here in Florida, and I understood that it has to be ordered, and delivered.
I gues this cream will be pretty powerful and effective?

The cream I use, was prescribed by my rheumatologist, and I have to go (far) to a compound pharmacy for it.

Yes, I tell you, the term "salt being pored in open wound" will describe it well.
I even told the doctor that. I do not think some of them actually understand.


All the best
Synnove

Urogirl
For the burning pain, I use different things, I guess. For the burning pain, I use a combination of Amitripthylline at bed time and Lyrica 3 times daily. The neurologist said the Amitripthyline should verry effective, and he wants me to take a higher dose, I am trying to taper up slowly. because it has strong anticholinergic effects such as dry mouth, dry eyes and could cause urinary retention.
I have not gotten in to the use of supplements and food sources yet, there is just so much to learn.
I have a really healthy BREAKFAST suggestion that I use every day: Home cooked (from scratch) oatmeal. Spread Flaxseeds on top, and lots of frech blueberries and strawberries.
In addition, I use the compound cream in between doses.

All the best
Synnove

I have the same problem with cold feet and legs. I am really having a problem with this due to our winter weather here. It has been brutal! My lower legs and feet also feel the stocking sensation, as if I am wearing something tight or restrictive. This is pretty consistent throughout the day but does appear to get worse in the evening. I am able to sleep without too much discomfort, as long as I do not move around too much. I also seem to be sleeping far less.

What have you been diagnosed with? I may have missed it if you said before. Thank you.

Yes I am wondering what it will be like come winter.

Kitt, I was diagnosed with Idiopathic Small Fibre Neuropathy in 2009. My symptoms subsided for quite awhile but returned in the Fall of 2013.