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Old 02-19-2014, 01:50 PM #31
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Originally Posted by Dr. Smith View Post
If this continues, you may—if you want—talk to your doctor about tapering back off of the gabapentin.

Doc
Hi Doc Smith,

I have only been on Neurotin for 1 week at 1800 mgs and have been on Neurotin for 2 weeks total.

It just now got to the point of being really bad that is why he put me on 1800 from 900 mgs of Neurotin.

I go to a specialist in April can you believe to wait 2 months for an appointment.

Yes this is another day just a little uncomfortable nothing like I want scream an
cry. My short term memory is fine I work on a computer in customer service and function well. I did notice I will go for something sometimes and forget what it is till I back track but that only happened a couple of times

I forgot to tell you it's not 1800 mgs its 1500 I only take one at night.

Thank you,
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Old 02-19-2014, 03:24 PM #32
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It's not unusual to have to wait several weeks for an initial appt. with a specialist. The wait for subsequent appointments is usually (not always) considerably shorter.

I saw one specialist several years back and went through this process/ordeal. I had need to see him again within the past year, and was told I'd have to wait (around two months) because I was a "new" patient. I told whoever was booking the appt. that I was not a new patient, thinking I could get in sooner. She put me on hold, and when she came back, had looked up my records. Because it had been longer than 5 years since my last visit (it was 5 yrs., 1 month) I was considered a "new" patient (bureacracy rules) and had to go to the end of the line again. Gimme a break. Turned out to be a wombat anyway.

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All opinions expressed are my own. For medical advice/opinion, consult your doctor.
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Old 02-21-2014, 10:29 PM #33
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Uglogirl, do you take a hot or warm epsom bath? I use to LOVE taking hot baths with epsom. I would even settle for luke warm, but even showers have to be fast for me as hot/warm water cause my feet to start burning. Epsom really does feel great but taking a cool bath is not exciting to me when I sit around with cold air blowing on my feet all the time. When I do give in to my love of hot baths, I sit with my feet hung on edge with a battery fan blowing on my feet while everything else sumberges into hot oblivion. But its weird, hot on one end cold on the other.

I am just wondering if the hot/warm water does not bother you???

Also, my best relief for burning is biofreeze then stick my feet in front of a fan. I even have a portable one that fits in my purse. Also, dealing with inflamation seems to help, currently zyflamend and curcumin are definately helping. Well, actually, I just started the curcumin, but the zyflamend is definately helping the burn to be less severe.
Hi Stacy, Yes I take Epsom Salt baths every day to other day the past two weeks.

I have had it bad with the tingling, burning, hurting, shooting shocks, numbness, feeling of have a glove or sock on my feet, the whole nine yards of symptoms

Now I am taking Garbapentin third week and it has calmed it 80% to where I can function and not think about it constantly or be reminded with one symptom or another every second.

Getting a reprieve from it is wonderful feel like my self.

Like now feel some discomfort in my right foot and a little burning on the toes on the left foot.

Today it has acted up the most since last week. A couple days had very little in the way of symptoms.

I hope it keeps up this way until I GET TO A SPECIALIST AT LEAST.
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Old 02-21-2014, 11:36 PM #34
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Can I ask what the epsom salt baths do to help? I have never heard that suggested before. Cheer.
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Old 03-04-2014, 05:58 PM #35
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Can I ask what the epsom salt baths do to help? I have never heard that suggested before. Cheer.

Hi!
Epson salts relax your whole self helps with stress. I have the scented Epson salts, the whirlpool and it seems to help quite a bit.

If I am having a bad episode it helps while I am getting my Epson/Whirlpool treatment when I stop the treatment back to miserable again then I go for motrin and a Xanax. In addition take GABA and vitamins the ones recommended on this site.

I have had PN going on a month now to where it's is debilitating.

How are you doing? Keep in touch!!!,

Last edited by uglogirl; 03-04-2014 at 06:01 PM. Reason: too large
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Old 03-09-2014, 11:11 PM #36
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Hi, What helps with the burning pain. The burning is constant and intolerable.


Hi!

Did you find anything to help with the burning? I agree the burning is intolerable.

Please let me know I would certainly appreciate any info to stop this infernal burning sensation on the tops and bottoms of my feet.

Thank you
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Old 03-09-2014, 11:18 PM #37
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Hi Staci
The temperature of the water does not bother me one way or another. I do tend to but ice in a bag at night at stick my feet in it one at a time. This seems to help with the burning.

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