This question is really difficult for me
I have always been an excellent provider for my family.
I have been working since this disease started showing constant symptoms 2 years ago. I work a desk job 40 hour week, and am on call 24X7 every 6 weeks for 2 weeks straight.
Every month we are required to work a Saturday night for about 6 hours.
Between work and taking my child to soccer practice/games and weekend visits, doctor's visits, IVIg, grocery store, cooking, etc. it is extremely difficult to handle. I am certainly thankful I am able to do these things right now, but at what point does the core reactor melt down? I am literally dragging myself out of bed some days.
I always thrived on stress, but now it is my worse enemy and I believe the grueling schedule will soon be too much for me.
Ever heard the saying "My job is killing me", this may very well be the case for me. I am not sure how I do it. I am recently divorced and now feel the pressure to continue to try to make this all work for the sake of my child.
Ever seen the I love Lucy episode about the candy factory? This is how I feel now.
http://www.youtube.com/watch?v=HnbNcQlzV-4