I can not believe how bad I have gotten in a week. It has never been this bad. I can't sing my way out of this, pray my way out of this, pop pills and supplements, nothing. I am sinking into a deep dark pit. I have not slept in days, when I do it is for 20 minutes at a time. I can't function. I keep my feet in a bowl of water constantly with bags on my feet to protect my skin, nothing else works. Life has come to a complete and total stop.

I have never experienced non stop pain like this. If I am lucky I get 20 minute breaks. Most times when I do sleep I am sitting up in a chair with my feet in the water.

Worse of all, it is moving into my hands. I have tried to deny it to myself, but I just cant anymore.

I give up. Drugs and comatose sounds better than this. Now, how to find a doctor? Do I need a neurologist? Do I have to have a referal or can I find one myself? I don't trust the general doctor I have to give me a decent referal in this small town.

Im so lost and even my faith is not helping right now.

Are you taking that iodine treatment? I think it is time to stop that for now. Iodine causes skin reactions.

I stopped everything today. Everything. Nothing works anyway.

Stacy, I am sorry. It could be that something is making your hands sensitive.

How much Alpha Lipoic acid do you take throughout the day? Have you read about Berberine and NT Energy Factor? (phospholipids) I am hoping this will turn around for you.

I am posting at an EM forum also and they agree with me it was the niacin that sent me into this abyss. Now I am in a vicious cycle and cant get my feet out of the water.

I have never been so low in my entire life as I am today. I can't talk without crying. I am supposed to call someone about this but I know I cant have a coherent conversation right now.

What is Berberine and NT Energy Factor?

Time to get to a doctor for some advanced testing.

I am working on it. I just spoke to a lady whose daughter had this, she got it while pregnant and the spent the money for a phone consult with dr kohen, I think thats his name, the guy in the link here in the old thread.

She is making some calls to her doctors to see if she can find one for me close to me.

I felt no comfort talking to her, it sounds as if her daughter went through a hellish ordeal before getting it somewhat controllable.

Im trying to stay calm as stress makes it worse but with everything I find out it only gets worse. Her daughters story was like a horror story.

So, now I wait and see what if any dr she can find, if none, then I start on my own.

I cant remove my left foot from water at all and its swollen so huge just like those pictures.

How you doing ?

Please give us an update.

Debi from Georgia

I hope you have decided to go to an ER.

You could have gout or something more
complex. Or more than one thing going on.

Do not use that infrared dome if you were
doing that.

I hope you can find a moment to update us.

Stacy,

I hope you are doing better. I saw on your post that you feel niacin was your trigger for this. I recently read that excess niacin (B3) is metabolized by methylation and thus uses up methyl groups. So if you have an issue with under methylation and are lacking in methyls, then niacin could have further depleted them. Restoring them may help if this is the case.

I hope you get back on track soon and get some relief.