Originally Posted by chloecasey

Rory47,

I have started having issues similar to yours and have been doing much research. Had previous surgeries for TOS plus complications requiring 2 further surgeries. These surgeries did result in some permanent nerve damage because of encountering certain nerves within the surgical site, I was told by my PCP that nerves were overstimulated at the surgical site and as a result my pain is amplified, likely Fibro without the tender points. My pain too is in various places throughout and currently my PCP has me on 30mg generic Cymbalta....does not do too much....he's being conservative I guess.

Along with that, I did research on Fibro & found research by a Dr. Andrew Holman.... Positional Cervical Cord Compression or PC3. If you google his name or the title of his research there will be information and papers he has written about his theories.

Recently, I had the type of MRI done that he is recommending in his research and will be getting more than 1 opinion as the 1st neurosurgeon saw, I believe was not willing to accept that what was found could be causing my problems even though it clearly stated that there was "near abutment to the spinal cord at several levels". My pain is worse when I lay down, where so many people say their pain is better when laying down. As a result, I believe that nerves are compressing at levels that even though I am able to sleep, I wake up often & when I finally force!! myself to get up (11 AM usually) I am in bad shape with pain, nausea, & ill feeling for several hours and often throughout the day.

Lastly, a relative of mine has chronic pain (she has a history of scoliosis and just within last 2 years issues caused from a car accident....has had multiple surgeries, meds, etc.) and is now going through P-Stim therapy and has been able to reduce her meds by 1/3 and is feeling better. This might be a good for you to explore as your situation sounds like any further surgeries /PT is not option!

chloecasey