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For your entertainment, I thought I'd share some PN related comments from a family in denial despite repeated attempts to educate them.
"You're STILL not feeling well?" "You seemed fine last week" "Would some soup help?" "You look great, not sick at all!" "Maybe if you got some exercise" And my personal favorite... Family member: "I guess there's a new laser for nerves. Maybe you should try it." Me: I don't have that kind of neuropathy. I have PN all over my body. Family member: "Well. We tried." Two years after my diagnosis, my closest sibling sent me a text: "I heard you still don't feel good". Unbelievable. It seems no one understands besides other PN sufferers. If you had cancer, everyone would know what that meant but most people don't know what PN is and they don't get that it's a complex disorder, one that obviously doesn't get enough research or media attention. I find it frustrating when loved ones fail to educate themselves about PN. We have the internet now, there is no excuse. If you don't know what it is, look it up. |
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