i am currently very frustrated
My issues with neuropathy begin almost 2 months ago, on jan 8, when i first notice loss of sensations: no sensations of full or empty bladder, full or empty stomach, anything that is internally stimulated. I also have loss of smell and taate, fluctuates between 95-70% on some weeks. Pins and needles that move around on my left side and right side.
When i went to the pcp, she only found vit d deficiency when i was tested back in december, the welfare system has no online system, where you can access your medical records online, so i have to find out months later. She then to start basng my symptom as caused by mental problems, and genetic issues, but she was so evasive on any other diagnosis, i felt like she only interested in those diagnoses instead. BACK IN october, i stupidly told the Nurse, that i had kaiser before i turned 26, and it showed various tests, diabetes, mri,thyroid,,,etc back in 2013, which were normal. Now even the pcp, and the er docs i went to on the same week i got my loss of sensations, automatically dismiss any symptoms i have and its not attributed to neurological issues. and the PCP kept on pointing a genetic relationship. I have lost these sensations so suddenly on that day when i took diphenhydramine with day time non-drowsy, i kept pointing this out because i lost all these sensations at the same time, and they kept dismissing because side effects dont last long. I have found on other forums that long term effects can happen in very sensitive individuals.

jan 8th-10th- I took the dph,dxm, dextro, phenyleprine. I started to get chills, shakiness for no reason(it wasnt cold out), then i started to twitch, and jerk uncontrollably while on diphenhydramine. The next day i went to the er, i notice at the er i twitched uncontrollably, the docs dint seem to notice for some reason, i was also tachycardiac at the time as well(continued to this day). i complained of unusual sensations on my skins(later turned out to be pins and needle and alter temp sensations)
the next few days, i experience RLS, myclonus jerks while falling asleep.
-few weeks later i noticed my sensations for my internal organs have disappeared(99%) i suspect it began on the same day i loss my sense of smell and taste(90%).
feb3-went to the pcp, she did all that asking questions,and dismissed many of my symptoms, or ignored it. She doesnt feel like its a serious or immediate issue. she has no basis for that statement. I also said my symptoms keep waxing and waning. sometimes it subsides a little, but symptoms get worst at some point as well. she ignored this as well. I do have a specialist(i dont know what kind) but its on april30th, more than 2 months away(wtf).
i have looked at MS parkinsons, Diabetes neuropathy, THyroid problems, Lyme, vit deficiency, still cant pinpoint which conditions or syndromes can contribute it. But i zeroed in on temporal and parietal lobe injuries(diseases), as this the only thing i can find that if there is damage to a part of the brain it can cause symptoms.
I have been taking diphenhydramine 1 times a night for nearly few weeks before i stopped. and also a few weeks in early december as well. I had a particular nasty cold in december(it gave me bronchitis), i dint have a fever, because i took non-drowsy pills early. bad mistake, since fever helps stops infections, the lack of fever probably allowed the infection to be more severe, and unknowngly damaged my nerves. at some point before i loss my sensations i might have hit the top of my head while doing pushups, my head hit the door.

I have found, after going to world renowned Mayo, big teaching place well regarded place, and local, that one has to act like they are completely fine and recite their symptoms only when asked. The recitation has to be as benign as listing a recipe.

I have been labelled anxiety ridden many times, when I was not, but the doctor listening was. Try to have the dates (like you have listed)-that is good. Try to discuss the symptoms and how they changed. Focus on the exact symptoms now. I thought the history was very important too, but when you connect the dots for them, they discount the connection, because it is not their idea.

I am not just being negative. I am trying to help you get to being heard.
I am sorry that you feel so badly.

i dont know if the tuesday appt will be worth it, since she already dismissed it as a organic cause. and a specialist appt that is months away is just another one of her "its not a problem, its in your head". none of my symptoms subsided to normal one bit, they only go into a quiescent state, then come back more widespread or with a new symptom. At one point i lost almost all my smell, and getting strange sensations. The odd thing is that i dont have neuropathic symptoms like other people, such as consistent pain, numbness. At one point at the end of last year, i had a burning rash. The symptoms came all at once when i took the diphenhydramine 2 months ago. mostly its peripheral nerves that are affected, the ones that detects sensations. I do not have numbness or pain, just loss of internal sensations like my smell. She already blew off the other vitamin deficiency tests. I think i need to be retested for thyroid and glucose issues as well. or an possible MRI. They dispute that my smell loss is a result of neurological, i disagree since my smell loss coincides with my pins and needles neuropathy, "when i get an attack fo pins and needles, i can feel it in my nose(eventhough i loss sensation of air going through the nose. I will try to ask for an earlier appointment, for the specialist. She believes im psychosomatic.

Your next appointment, you might get a nutricion panel done. Zinc based products can affect smell and Zinc-Copper has a ratio that if too far imbalanced can have Neuopathic symptoms. Try not to lock your mind to the sleeping pills, there may be other stuff going on. Good Luck, Ken in Texas.

So here is all about the olfactory nerve:

http://en.wikipedia.org/wiki/Olfactory_nerve

You may already know this.

You can play dumb, and say, "Doctor, wow, I thought sense of smell was related to a cranial nerve. I am not a doctor, but aren't the cranial nerves neurologically related and this one regenerates. So could I not have different sensations related to smell?"

On the other hand that might be too aggressive. If you have a person that is funny, maybe they can make a joke and the doctor will relax.

I have a friend now with folks listening to her "fibromyalgia" finally believing her symptoms after 10 years.

She says, "Doc, I don't know what is wrong with me, but I am jacked up!"

This forum has helped me more than all the docs, family, and friends combined. Very few people can relate to symptoms and even the Neurologists don't want to hear your symptoms-guess it wears them out. I do not wish my symptoms on anyone for any 30 seconds.

Hope you are better soon and get heard by someone who can help you.

My symptoms do fit a lot on zinc deficiency but I don't know abt pins and needle. I have not used in zinc based products, like a zinc spray. I dont know how this fits in with loss of sensations. I dont know if its a good idea to go to appoint ment, because based on the last visit, she was more inclined to not find an organic cause to loss of sensations/neuropathies, but kept digressing that this is genetic or heridtery, or mental in nature. What little info i can gather is that all the sensory info leads up to the parietal lobe or temporal lobe damage, either by disease,drugs or injury. i tried to explain this happened all suddenly, if it was genetic, or mental, i shouldve have symptoms for like years, which i do not have. Before i loss my sensations to smell and internal organs. i had very acute sense of smell, better than most people. Besides i do not have my medical records, and my vit d is low, but i dont know how low. She was very resistant to doing any more blood tests, she only did cbc and b12, which i dont think will show anything useful, i did ask her to do all my deficiency but she completely ignored it. Im going to ask for copies of my medical records/test results, tommorow when i go. I will not intend to stay any longer in the visit, only to ask to be tested for deficiencies and for lyme disease, since im going to see a specialist later anyways. If all they do is give me the run around, im going to have to switch to anthem blue partnership plan(welfare, Medi-cal in California) for other options, i have read horror stories about Anthem blue insurance, where they drop people out of network, without notification.

to a specialist later anyway, then it makes sense not to ask for a full panel blood test. The GP may not know the significance of the readings found. Good Luck trying to connect the dots, the dots keep moving. Good Luck, Ken in Texas.

I decided to wait for a specialist instead of going to an useless appt today. On the last vision, its like she had no intention of getting to the bottom of this, instead trying to point to the easiest diagnosis out there.