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03-06-2015, 05:31 PM | #51 | ||
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i started using gabapentine for the last 5 mouths but i am getting of it because its not doing anything.
And secondly i am not in that much pain its these days more stiffness and numbness that i have to deal with and ofcourse a little bit of tingling in my feet. |
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03-08-2015, 11:38 AM | #52 | |||
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Maybe someone who knows more than me about this can chime in, but my current understanding is that a skin biopsy is the only way of showing "clinical evidence" of SFN. All the other tests would be normal. Or am I misunderstanding? Last edited by janieg; 03-08-2015 at 11:40 AM. Reason: added tests taken from original post |
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03-08-2015, 12:50 PM | #53 | ||
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For me the best of the nerve pain symptomatic drugs was Amitriptyline which I took for three years. I discovered by accident (forgot to take them away with me!) one day that it was causing the heart palpitations which were pretty heavy going so I just had to stop. I have a conflict here because I wouldn't want anyone to be in pain unnecessarily but some of the drugs I've been prescribed have been very problematic - swelling of the face and neck and ears, awful red itchy rashes, nausea and sickness both ends 24/7, drunken dizziness and anger, nose bleeds, hives - you name it I've suffered from it. One Parkinson's drug I was tried on for RLS had me falling asleep on the middle of a beach in the rain while walking the dogs! So I wouldn't know where to start with advising you - this wouldn't be appropriate I feel as these drugs are well tolerated and very helpful to many. It's not that I'm not in pain - it's just that the way I respond to pain might be very different to the way you do.
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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04-22-2015, 12:10 AM | #54 | ||
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Magnate
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Joe, Thank you for your input. My sister-in-law came down with shingles about 3 yrs ago. Her pain is over one eye. The doctor is still prescribing Cymbalta once a day and Lyrica twice a day. Hubby went with her to doctor's appointment last Friday asking specifically about decreasing and eliminating those two meds. He said he would reduce Lyrica; but felt when she originally came to see him, she appeared to have some depression. Who wouldn't have some depression with Shingles. Will pass this info on to hubby/sister-in-law. Thanks again. Gerry |
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04-22-2015, 03:47 AM | #55 | ||
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I heard certain pain drugs, lose thier effectiveness, overtime once you take them, and you build tolerance.
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04-23-2015, 09:16 PM | #56 | ||
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Magnate
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Originally My PM did gradually up my prescriptions until I came to an acceptable point in dealing with the remaining pain. I've been on my same dose of Oxycontin, Percocet, etc. for about the past 4 yrs. My pain is still 24/7; but tolerable. When the need for breakthu med arises, I take the Percocet. Usually 3 -3 1/2. My scrip calls for a max of 4 per day. I can still tell they are working. Gerry |
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04-23-2015, 10:47 PM | #57 | |||
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I have also learned (the hard way) to describe symptoms and convey my experiences in a calm manner. I need medical help and the last thing I want is to trigger my doctor's own fight or flight response. |
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04-24-2015, 12:30 AM | #58 | ||
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Ah, remaining calm with the physician.
I think it was about a year ago we had a heated conversation over testing or medicating further. I wanted one or the other. He saw hemming and hawing as talking points. So, he says "Let's check that blood pressure, eh?", assuming some crazy number is coming- 120/80. I think what gets me ramped up most is I have so much I'd like to talk about.
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I urge you to please notice when you are happy, and exclaim or murmur or think at some point, "If this isn't nice, I don't know what is." - Kurt Vonnegut "It's an art to live with pain, mix the light into grey"- Eddie Vedder Just because I cannot see it, doesn't mean I can't believe it! - Jack Skellington |
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04-28-2015, 10:19 PM | #59 | ||
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The neurotin had caused me much more pain than what I was having before.
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"Thanks for this!" says: | ger715 (05-06-2015) |
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