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Old 04-28-2015, 07:22 AM #1
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Originally Posted by canagirl View Post
I often wonder if there is something growing or causing inflamation at my needle sites. There is just so much going on in those areas, I think maybe something is impeding healing.
What would test for that?
It's crazy that the needle spots can be seen months later.
Maybe some kind of bacterial infection? Can you get your blood rechecked?
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Old 04-28-2015, 07:40 AM #2
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Englishdave, what are your eye problems? are they due to the neuropathy or unrelated? I haven't heard of anyone else on here describing eye issues that's why it scared me so much,.
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Hey Canagirl,
In '13, on a rare occasion when I was driving myself back from radiotherapy, I was instantly struck with double vision. At 60mph everyone suddenly decided to drive on the right! After a rest, and by squinting through one eye, I managed to get home.

A year of tests, culminating in an MRI, shows a large, jagged lesion in the occipital region of my brain as the untreatable cause. Idiot Neuro could not tell me whether stroke, TIA or something else happened. I wait every day for another incident to rob me of another function.

Eye problems are one of the fastest causes of total life disruption. Driving - gone = no freedom. Reading, tv, computers all severely curtailed and modifications needed to participate. Hobbies like photography - impossible.

Cause is not as important as effect when we are discussing general living here. It's a hard road, which is why you need to take in Littlepaw's words. A similar journey from one who comes out fighting - with help - should give you a great boost.

Try not to let things overwhelm you, new symptoms will appear - some related, some not - our bodies love to break down like a car, once something goes it takes other seemingly unrelated parts with it. That is why Counselling/Therapy would be SO important for you to cope with all these issues.

I would also watch your Depression and self-esteem with your position at work. Ok, so it takes your mind off things and isn't strenuous, but crying in the bathroom is mentally shattering. Think about this.

Dave.
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Old 04-28-2015, 11:29 AM #3
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It's crazy that the needle spots can be seen months later.
Maybe some kind of bacterial infection? Can you get your blood rechecked?
I know! My doc didn't seem to concerned about it. He doesn't think the acupuncture caused anything. He did admit however that he can easily see some of the spots (he put his fingers right on them before I had a chance to point them out ) They are small, red little bumps (you would mistake them for a pimple except they are in the exact same spots on either side of my spine (spots where she put the needle in) and have been there for months. He gave me a cream and that was it. Maybe I will ask for a blood test...what kind of test should it be?
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Old 04-28-2015, 11:36 AM #4
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I would ask to be tested for sarcoid, and Behcets syndrome.
Sarcoidosis makes inflammatory tissue in the body for little or no reason. And Behcets is an autoimmune disease that causes skin reactivity to injury.

Having those bumps still be there is not typical.

Behcet's:
http://en.wikipedia.org/wiki/Beh%C3%A7et%27s_disease
one test for this is disturbing the skin with a needle to see if
a bump occurs that is slow to heal.

Sarcoid:
http://en.wikipedia.org/wiki/Sarcoidosis
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Old 04-28-2015, 12:33 PM #5
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I would ask to be tested for sarcoid, and Behcets syndrome.
Sarcoidosis makes inflammatory tissue in the body for little or no reason. And Behcets is an autoimmune disease that causes skin reactivity to injury.

Having those bumps still be there is not typical.

Behcet's:
http://en.wikipedia.org/wiki/Beh%C3%A7et%27s_disease
one test for this is disturbing the skin with a needle to see if
a bump occurs that is slow to heal.

Sarcoid:
http://en.wikipedia.org/wiki/Sarcoidosis
Which tests should I specifically ask for? ex. blood testing for ana or something?
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Old 04-28-2015, 12:59 PM #6
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Lightbulb

I believe for sarcoid it is a test for ACE enzyme in the blood.

Quote:
Blood tests -- Blood analyses evaluate the number and types of blood cells and blood proteins in the body, and how well the cells are functioning. They also track increases in calcium levels and abnormal liver function that sometimes accompany sarcoidosis. One blood test measures a substance called angiotensin-converting enzyme (ACE), which is secreted in large amounts by cells that make up granulomas. ACE levels, however, are not always high in sarcoidosis patients, and increased ACE levels can also show up in other illnesses. In short, there is no specific blood test to diagnose sarcoidosis. A newer blood test that is sometimes more useful than ACE is measurement of the soluble interleukin 2 receptor levels (sIL2R).
from http://my.clevelandclinic.org/health...s_is_Diagnosed

Behcet's:
http://www.mayoclinic.org/diseases-c...s/con-20027549
The pathergy test is commonly done first to screen. You seem to still have your bumps from the acupuncture!
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Old 04-28-2015, 01:15 PM #7
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Behcet's:
http://www.mayoclinic.org/diseases-c...s/con-20027549
The pathergy test is commonly done first to screen. You seem to still have your bumps from the acupuncture![/QUOTE]

I haven't had any sores (which seems to be one of the must haves). so maybe not this but the sarcoidosis seems like a reasonable thing to test for.
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