We have never had it in our lives until this summer. It is just bizarre! I'm crazy trying to figure this out. It goes away when we get out of the sun in about 20-30 min and doesn't occur every time.

It makes sense that if it was a toxin it would occur whenever you were outside. Where it is only happening when you are in the sun, maybe google skin rashes from sun exposure and see if you can find something there.

Hi healthgirl

Just a maybe: Photosensitivity Dermatitis:

http://dermnetnz.org/reactions/photosensitivity.html

and another one:

http://umm.edu/health/medical/altmed...hotodermatitis

Thanks Blues fan,
It isn't dermatitis but interestingly enough, as I was in the waiting room under a fluorescent light the other day, I was putting my palm of my hand facing down and then up. Every time I faced it up toward the light the skin mottled right before my eyes. I thought... nah... it can't be- but according to this link, fluorescent lights can cause the photosensitive reaction.
Crazy!
I'll point that out to the dr.
Now if they could just find out why our bodies are suddenly responding this way.

Here is another:

http://www.cape.ca/children/derm3.html

Not sure if that helps.

Sorry, I don't know about all your workup.

Looks like Livedo Reticularis to me. Google images and see what you think.

I checked out everything I could find and went to the derm. He said it is levido, but can't figure out what is causing it in all of us. There is no itchiness or lesions. It is below the skin, so its not really like a regular rash.
It happens anywhere in the sun where ever.

You've typed levido, but do you mean Livedo?

Livedo Reticularis looked a little similar although there are several different types of Livedo and looking through the information on Livedo, they're usually caused by some serious underlying conditions and I would doubt that 3 of you in same family of varying ages would suddenly develop that plus some of the info about the benign form of Livedo actually says it resolves with heat... and that appears to be the opposite of what you're all experiencing.

There is another condition called _ Erythema ab igne _ that appears to be more heat related than Livedo.... but heck, I'm not a doctor so it's all just guess work. It is associated with chronic exposure to infrared radiation or low levels of heat.

It sounds as if it's related to your exposure to the sun. Maybe you're all just really sensitive to UV radiation from the sun??

Are any of you anaemic? The skin in your photos looks very translucent. I remember seeing others you posted on another thread and skin looked translucent and pale there too.

It's funny that you mention translucent skin. I am sure that my skin has become translucent through out the course of this neuropathy. It is disturbing.
I thought the kids skin was looking a bit off as well.
I have low ferritin and copper deficiency which would account for the thinning skin. I'm trying to figure out what caused that deficiency. I am learning that some toxic exposures can complete with necessary minerals and it looks like I might be onto something.

Until this summer, none of us has ever had a photosensitive reaction. We don't burn. This is completely knew. My autonomic symptoms started just about 2 years ago, painful neuropathy started about 10 months ago and the rash started sometime in June. My kids started all this month.
If my 12 year old wasn't having neurological symptoms, I would think maybe the kids and I happened to have 2 separate issues going on, but she is having so many similar symptoms, so I can't help but think this is connected.

Low copper raises a red flag when it comes to neurological issues. Iron, copper and zinc need to be in balance. How is your zinc?

Rare metabolic mutations can be involved in your body's ability to absorb and utilize copper. Unfortunately, restoring copper does not alway lead to improvement in symptoms but will stop further progression.

http://www.ajnr.org/content/27/10/2112.full

http://www.neurology.org/content/63/1/33

Hope you get this piece of the puzzle sorted out soon.