[canagirl]

If u have both large and small fiber can u tell the diff in pain and symptoms?
For the last few weeks the burning in my hsnds, feet and lower arms is intense and feel different. ITs not the sunburn burn but a deeper burn that also comes with horrific pins and needles. Does this represent large fiber damage? My emg in feb only showed carpel tunnel, but I'm positive there's damage

[canagirl]

Trying to stay calm but I'm really stressing and panicking. I know everybody flares but has anyone had a severe burning spread for a few weeks then withdraw?
Ps I've had tingling all along but this is a crazy burning pins And needles/ tingling deeper burn ( not a surface suburn type burn)

[canagirl]

I don't know if anybody has the answer to this... But others in here seem to describe their burning and other symotoms as waxing and waning or not all present at the time all over their bodies. Mine is always there in every fiber all over all at the same time. For example , my burning and stinging feels like I'm in a tight bodysuit.( head to toe) that is on fire. Constably. Why is that? What don't my symptoms come and go or wax and wane? Why are they so fierce all the time ? And all at the same time. For goodnes sake even my tongue is burning

[Susanne C.]

I have severe SFN and LFN, as a result of CMT (hereditary sensorimotor neuropathy). With almost no sensory feeling left in my feet and legs distinguishing between the two is difficult, but I assume the burning and stinging pain is caused by the SFN. The strong, sharp pains in my legs and the constant ache is probably from the weakened muscles trying to carry the load. I have visible muscle wasting, but this is from a long standing disease process from childhood.
I am also one of the people here with all over body burning. I am currently having a flare of this, just sitting or lying down is uncomfortable - contact with the furniture burns, even if I put a soft blanket down, most of my clothes burn my skin, and my hands lying in my lap or one leg touching the other hurts. It is very distracting and uncomfortable, even painful to the point of making me pace the floor. Having constant consciousness of all over skin burning is a crazy-making situation, I do understand.
The first time this happened I told the doctor and we tried withdrawing my opiates, which had no effect on the burning but pushed the pain and sleeplessness through the roof. Then we thought it might be changing gabpentin manufacturers. Nothing made any difference. After a few months the burning contracted to my left thigh which has remained extremely sensitive. This pattern repeats every so often. I am not sure if it is affected by the weather or hormones, but it is particularly bad this time. I do not believe there is any treatment beyond trying to make yourself as comfortable as possible, choosing clothes with care, and keeping cool. I do find that if I get warm it is worse. It has lasted for several months at a time.
I believe this to be a symptom of SFN.

[Kitt]

Originally Posted by Susanne C.

I believe this to be a symptom of SFN.

True enough.

[canagirl]

Thanks Suzanne. It's reassuring to hear that your burning subsides at times. It's horrrible that it's a cycle though. I hope mine will subside for a tine

[stillHoping]

Hi Canagirl, I am sorry to hear what you are going through and hope you would find a treatment.
Are you taking any new drugs ? Is it possible that some of your new symptoms are an adverse effect ?
I tried taking Imuran for a couple of days, had many side effects and had to stop it due to an allergy reaction. 3 weeks later my skin, all over the body, still burns, as if I was burnt by the sun. In my case I know it is an allergy reaction and not the SFN since I got a rash and antihistamine alleviate it.

[canagirl]

I'm taking a b vitamin that I haven't taken in a while and r lipoic acid as well as ALC. It could me these...

[DejaVu]

Originally Posted by canagirl

I'm taking a b vitamin that I haven't taken in a while and r lipoic acid as well as ALC. It could me these...

Hi Canagirl,

Again, I am very sorry for all you are going through.

I am a fan of judicious use of supplements, if they help.
I am a fan of judicious use of mmj, if it helps.

If I were in your shoes, I would omit supplements and strip down my diet, for awhile.

I don't mean for you to go into a fast.

I would eliminate variety for now and see what happens. I would keep a food diary and slowly add in additional foods, noting any changes.

An example might be: Brown rice, organic chicken (if you eat meat and organic is a possibility) and cooked (steamed?) veggies (for now). Purified water. A hypoallergenic multivitamin.

Generally, I advocate for lots of raw veggies, However, your body is in an acute struggle. I would take the dietary load off. Yet, still be sure your diet is adequate.

I would then add in supplements, one-by-one, and observe any changes.
I would also introduce additional foods, one-by-one.

Do you take meds? If so, have you checked them for side-effects similar to anything you are experiencing? Have you checked meds against the list of meds known to potentially cause/aggravate PN?

My scalp feels like it's seriously on fire when I ingest anything I am allergic to and/or anything I put on my skin or scalp(shampoo, conditioner, etc.) to which I have an allergy. The reaction is extreme.

I was into supplements in the 1980's when there was a very serious illness associated with an amino acid supplement. I was taking the supplement. Luckily, I had a different manufacturer than the manufacturer where contamination was found.

Please make sure any/all supplements come from highly reputable manufacturers. Many supplement companies guarantee purity. Many have manufacturing facilities approved by the FDA.

Read the thread on excitotoxins and make sure you are not exposing yourself to any of these.

This is just a suggestion. I cannot guarantee it will help you. I will tell you this type of an approach has often helped me when I have been in severe flares of the type of severe discomfort you describe. Each person is different, of course. I am very concerned about the type of agony you are enduring and I'd wanted to let you know I have found this helpful at times.

I'll be thinking of you.
Healing, Comfort, Peace ~
DejaVu