It's all a crapshoot when dealing with specialists. I get help from my GP and the rest can go hang. He's actually slightly rational.

Pinky Nose the only thing I was told about controlling PN was to keep my sugar down, exercise, rest, control stress and yes don't cross my legs what's told that at physical therapy. I hope with following a plan the fibers and all else involved will heal they push lyrica Gabapentin, etc.


Uglogirl

Thats a very general statement, especially fi you dont have diabetes or injuries. neuropathy has multiple causes, most are unknown.

I appreciate your responses more than you'll know. I am feeling much better today about the whole experience, which is what it was. I have regrouped and will carry on. Yesterday I just kept singing a song by Chumbawamba "I get knocked down But I get up again You're never going to keep me down!"
It is now a ringtone on my phone. (Of course it is a song that references a lot of drinking, but I just take what I like and leave the rest

Pinkynose: I had a similar experience. My general neuro referred me to a neuromuscular specialist who said he thought my symptoms were due to circulatory issues related to my varicose vein disease.

I then went to a vascular surgeon who said that I do have pretty bad varicose vein disease and she recommended surgery to correct it to the extent possible. However, she did not think that the vascular issues were causing my other symptoms.

Of course, just like you - I have other symptoms throughout the body that are clearly unrelated to the vein issues in my legs. I'm not sure why these specialists like to grab onto one symptom and theorize a cause - while seemingly forgetting about all the other symptoms you have.

Hi hopeless


Hi Hopeless

I had the Ecco and wore a halter monitor and was diagnosed with MVP. I really suffered with it with chest pains arrhythmia also had anxiety and panic attacks. My cardiologist now tells me I don't have it anymore. I have not had any symptom from it for 20 years and Good riddance to it.


Uglogirl

Dogwalker,
Were you on inderal for 20 years? Yes I definitely had an echo and halter by a renowned cardiologist even saw Dr Healy one of the top at the Cleveland Clinic if my memory serves me right she was involved in politics later. She has since passed away.

My cousin also had mitral valve prolapse and was told it was gone... Different doctor. The point is it can resolve itself. Yours prob resolved itself too. This girl that told me it never goes away who is the dental surgeons assistant did not know.

I also had to take antibiotics fir any dental work now they don't give them.


Uglogirl

I have had a heart murmur and mitral valve prolapse for many years. It is very common and I don't believe a big deal. The only way I know to tell if it's gone is by getting an ultra sound of your heart. The reason I am sure mine has not gone away is because I also have a leak in my tricuspid valve. I am monitored for this every year with an ultra sound so they also look at the rest of my heart and see the mitral valve prolapse. Some years back they changed the protocol for having to pre-medicate before dental work with antibiotics. Now in my understanding, people with mitral valve prolapse do not need to medicate. Hope this helps.

I have mitral valve prolapse too. Diagnosed in my early teens. Dr. usually just listens at my annual physical. Occasionally runs an EKG, but not very often--last one maybe, 6 years ago. Never taken any medication for it, except amoxicillion prior to dental cleanings---which was stopped several years ago, due to new research finding it wasn't necessary.. Interesting that so many of us have it.

Hi neuro problem, I know it was very general if this was the only post you read by me. I am a diabetic 2 and have severe sensori motor Polyneuropathy. Bottom line that is what I do. Watch my carbs, exercise,rest control stress,etc


Uglogirl