Through an emg, I was diagnosed with predominantly axonal sensorimotor polyneuropathy. I was also told that I have large fiber. It seems that most people here are small fiber. I want to know if our symptoms remain similar.. How much can I identify here when trying to be prepared for future symptoms? I am in a bad way and had a bad week with doctors. They are so horrible. I am upset and just looking for some knowledge. Please.

Hi Equine Dentist

Here's a couple of links to some informative sites:

http://www.ninds.nih.gov/disorders/p...neuropathy.htm

http://www.aafp.org/afp/1998/0215/p755.html

Getting your head around your specific diagnosis can be difficult as neuropathy is such a complex array of types (with variations), symptoms, causes and treatments.

It's good that your doctor's have been able to narrow down the type you have - were they able to figure out the cause?

There are all types of neuropathy represented here on NT so don't feel alone - we can empathise with how it affects you even if our range of symptoms doesn't match exactly. You may want to try and find older posts from others with axonal sensorimotor polyneuropathy by using the search function.

All the best for improvement.

Thank you very much. I will check them out as soon as I can. At first it was after back surgery. They said my nerves were tiny and stretched quite a bit. My left foot was restless and felt weird. After time, it was better and I moved on. Two years later, my father died, my mother needed a bone marrow transplant and my husband wanted a divorce all at the same time. It was a terrible time; everything was in his name and I was broke and upset. I couldn't eat and drank my face off. The nueropathy started acting like mad but I didn't know what it was. I didn't even care. I pulled through, will be sober for two years in February and settled the divorce. Doc blames weight-loss and booze. I was 86 pounds and I agree with her. Last February I was told that I have nueropathy and that with time it will heal. In June she called me and told me it was permanent. I called in July and was told it is large fiber when I asked. I just called again and was told it was predominantly axonal sensorimotor polyneuropathy. Just frustrated and very tired. I am trying to learn what to expect so I can accept it now. The letdown of a new symptom is tough, but at least if I knew that it COULD happen, I might not get so down. I am sorry, this week has been tough with pain. I was doing good.

I have heard sooo many DX terms that I am supposed to have. My PCP had DX words on MY paperwork that were never mentioned to me. Let me count some--bilateral progressive sensimotor polyneuropathy-peroneal neuropathy-Amyotrophy- this is just what I remember. I can respect your need to get an idea of what to expect. I just don't think that is possible. I think the Drs will hang some words on you that have little to do with your future progression or recovery. Mine was supposed to be progressive!!! But now I am better. Not as good as I wish but not worse. Don't hang your hopes on what the what the white coats say, they play word games. Merry Christmas, Ken in Texas.

You are a Special Agent when it comes to calming me down. I do see your point. The future is going to remain unknown. Coming here gives me relief in knowing that certain symptoms are disease related ( I can skip an appointment to explore). I tend to remain positive most of the time. I don't like to sat it's "progressing", it's more like changing. I used to fall down at random; that's worse than my face burning. Oh well, I will still check the links above and just chill out. I want to be a little more educated on this. Does sensorimotor mean I have small fiber as well? Etc. Thanks again, you tend to be miraculous at calming me down. And if you yell or laugh at me like the docs, I am none the wiser.. ha ha

I've been almost run over in a Chick Filet drive thru. Don't lie down in front of vehicles or fall down, they won't stop anymore. I cannot tell you about the length-dependency issue. My symptoms change seemingly around every six months. Not like clockwork but as soon as you get used to something and think it is going to be for all time it moves to the back of the line. I would never laugh at someone who was in a tight downward spiral as yoou were. To be able to pull yourself up and start fighting for your life takes more courage than I could muster. I am often glad that I have not been tested in real difficult trials. I don't think I would run but I might shake my teeth loose. If you are not falling as much you must be improving. Balance is very slow to heal, almost imperceptable. Keep plugging, Ken in Texas.