I have had PN since the 6th of March 05. I haven't had a test yet that has definatley confirmed the diagnosis. I need to have a skin punch biopsy,but it's not offered anywhere,and we don't have a Mayo clinic equivalent over here.

I do see the only small fibre specialist neuro in all Sydney,and have had extensive tests that have all come back clear. She diagnosed me with a GBS like syndrome due to medical history, presentation,patchy recovery,and ofcourse medical history.

With so much problems I have had with my head which include flushing,pressure,headaches,cranial neuropathy,dry eyes, some odd breathing issues like apnea episodes when I am awake, I often woder if this might not be partly attributed to a CNS problem, at least in part. But neuro says no.