Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-28-2007, 05:11 PM #8
MelodyL's Avatar
MelodyL MelodyL is offline
Wise Elder
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
Default

Megan:

Hi, My name is Melody. Welcome to our little group.

First thing you should do is start taking Methylcobalim. It's the best form of B-12. Doesn't matter what your B-12 level is. What the "EXPERTS" consider normal (for people with neuropathy), well, it's not normal. We should be in the 4 digit range.

Next thing you should do is copy everything that Glenntaj posted in his response to you. Paste it into a microsoft word document and print it out.

Bring it to your neurologist.

Glenn knows what he is talking about.

There are many many things that cause all types of neuropathy. My husband has been diagnosed with CIDP. Stands for Chronic Inflammatory Demylinating Polyneuropathy. My husband's mom had Guillian Barre when she was 53. Many many years ago.

Every single doctor we told this to poohed poohed us and said "no, it's not related to Guillian Barre. When I went on the Guillian Barre website, guess what I found? CIDP is a variant of Guillian Barre.

Do any of your parents or their parents, well, have they ever had Guillian Barre or MS or anything to do with nerve problems?

And they diagnosed my husband finally (after 15 or so years of neuropathy), well it took a Lumbar Puncture, and they found the protein in his spinal fluid and they said "Oh, there is auto-immune stuff going on here".

And when a spinal tap is done by a "good guy", well, my husband did not feel it. The guy used a fluroscope over the area and got it on the first try. It all depends on who does it.

So good luck on your journey. And come back and let us know how you are doing.

Remember, show the doctor what Glenn posted. Might even help him out a bit.

The guys on these boards know LOTS OF GREAT STUFF.

All the best

Melody

P.S. I've been taking 5000 each morning of the Methyl B-12.
NO more pins, needles, buzzing and burning. I am diabetic. I gather that's been ruled out in your case. Doesn't matter. Methyl B-12 saved my sanity and my life Give it a try. Look it up on Rose's website.
__________________

.


CONSUMER REPORTER
SPROUT-LADY



.
MelodyL is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
My story and some questions..long post! Lupin Peripheral Neuropathy 4 03-10-2007 07:15 AM
More RSD Questions Donna7 Thoracic Outlet Syndrome 17 02-21-2007 02:35 PM
Many questions... hurtsobad73 Epilepsy 14 02-11-2007 05:00 AM


All times are GMT -5. The time now is 11:19 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.