Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 09-09-2007, 10:03 PM #21
fanfaire's Avatar
fanfaire fanfaire is offline
Member
 
Join Date: Aug 2007
Location: Little house on the prairie
Posts: 179
15 yr Member
fanfaire fanfaire is offline
Member
fanfaire's Avatar
 
Join Date: Aug 2007
Location: Little house on the prairie
Posts: 179
15 yr Member
Default

I'm not nearly as educated as the others here, so I might not have any really useful info. But I do have Sjogren's like you, so I wanted to mention some of the symptoms I've had that were similar.

In May 2003, I woke up one day to find my left foot swollen. I thought it was odd but just went to work as usual. The next day, though, both feet were swollen, and the swelling on the left side spread all the way to the knee in just a few hours.

I went to the emergency room, which is something I almost never do. My bloodwork was normal, as was a lung x-ray, and an ultrasound of my left leg. I was told it was the Sjogren's and was put on prednisone for a week, which helped until the the med wore off.

I have had problems with edema ever since. It is worse in the heat, but I get it in the winter too if I go too long without elevating my feet. I'm thinking it may be caused by mild vasculitis as I have petechia on my lower legs, face and upper arms.

It could be something other than the Sjogren's that's causing your swelling, of course, but I thought I'd mention it just in case your tests don't give you any answers.

What I do about the water: I got a half-gallon water bottle, one that has a long strap so I can carry it on my shoulder. I cart that from room to room with me and never leave the house without it. I try to make sure I drink the entire contents each day, refilling it at bedtime so when I wake up in the middle of the night with my tongue all cracked and dry, I can take a swig and go back to sleep.

Please let us know what you find out. I'm most curious if your symptoms are caused by autoimmune disease or something else.

fanfaire
__________________
Sjogren's, neuropathy, gastroparesis, diabetes, celiac, Raynaud's, hypothyroidism, fibromyalgia, chronic myofascial pain, periodic limb movement disorder
fanfaire is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Finally Won! Piruka Thoracic Outlet Syndrome 17 05-19-2009 02:50 AM
I finally got It befuddled2 Bipolar Disorder 12 05-14-2007 07:57 PM
Finally... toyL Parkinson's Disease 2 10-07-2006 06:19 PM
and finally.....One Wish trekker On the Lighter Side 0 10-03-2006 06:15 PM
Wow Finally got on! DiMarie Thoracic Outlet Syndrome 19 08-25-2006 12:04 PM


All times are GMT -5. The time now is 07:58 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.