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Old 10-06-2007, 06:47 PM #7
Brian Brian is offline
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Join Date: Oct 2006
Location: Australia
Posts: 1,256
15 yr Member
Brian Brian is offline
Senior Member
 
Join Date: Oct 2006
Location: Australia
Posts: 1,256
15 yr Member
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Quote:
Originally Posted by Jason View Post
Brian, thanks for the info. That site says that QST uses temperature to test the small fibers and vibration to test the large fibers. He didn't use QST but he used hand held tools to test temperature and vibration and asked me for feedback. My legs were positive on the temperature and not the vibrations.

I don't understand how his test was positive for small fiber peripheral neuropathy, which is what I have, but yet he reported back to my doctor that he found no signs of it.

Help me with this. I have had an impossible time getting doctors to help me with PN the last couple months. Is there a medical record that doctors can access for information on patients. Mine would say "hypochondriac" for sure. I don't think there is such a record or anyway for doctors to get that information. Does anyone know if there is something like this? If there is I am SOOL.

By the way here is the neurologists website: http://www.med.upenn.edu/apps/facult...hp/g324/p11842

"Description of Clinical Expertise:
The diagnosis and management of peripheral neuropathies."
I also had a hell of a time convincing doctors that i had real problems, i went to 6 GP's none of them had a clue, one rheumie, that couldn't find anything wrong and one Professor of Neurology, who done a Nerve Conduction test and said, " i showed no signs of PN,[ nerve conduction only tests for large nerve damage] another idiot that actually said to me " i don't think you have burning feet, the test [NC test] proves that , it was the Internet that helped me find out what was wrong, in particular the PN forum i stumbled across in my desperate search for answers, the experts here pointed me in the right direction, thank god, so i insisted that my local GP send me to a PN expert which i eventually got to see [ after a battle with him ]and he diagnosed "Prediabetes" as the cause after a 3 hour Glucose tolerance test,
& i was running real low on B12 as well.
The reason why your feet are burning is that the small nerve's are damaged and are sending confused signals, your small nerve job is to sense heat, cold & pain, a clear indiction was when you felt that neuro's tool feel differant above your knee, he should have picked that up and sent you for a QS test.
I have to get going , pretty busy day today, but others will explain more.
Brian
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