This is terrible. You should call up there and raise h*ll with them over this. I think Daniella is right, you should not have to wait over the weekend or even another day. Maybe you should call back again in the morning, if they don't call you. Some doctors close early on Friday now.

My D levels have never been checked either. I have been on Prednisone now for 15 years. I failed to mention that he said that the bone density in my back could actually be worse than it appears in the test, because there is a lot of arthritis there that makes it appear to be bone, but may not be...

I am so stressed trying to get off of this stuff, but it is almost impossible when you are on it for rheumatic disease... I have nearly killed myself trying to cut my dose constantly, but you get terrible flareups and other problems, like lungs. The Endo's Nurse Practitioner told me yesterday that I may never be able to get off of it...

I am positive for MGUS, which can cause neuropathy. No one ever thinks to check for this. Since the abnormal protein in MGUS is also in Multiple Myeloma, I wondered if there might also be a link to bone loss. Both of you should consider this testing... Google about how this is supposedly NOT linked to implants. A number of the implanted women are positive for this though... I INSISTED on testing when I heard this. My Immunologist was stunned at the + result...

Cathie

know i take no crap off of Drs. after working for them and with them for 25 yrs.,call that Dr.and don't let the phone lady give you any excuse. Are you
will mention her to the Dr. when you talk to him....Gezz Dr's can be uncaring and stupid sometimes,yes even that one i'm dating. Sue

Billye:

Did the office call you back today?

Cathie

I'm calling on Monday to make an appt with Dr. Sakhaee. I know my experience before wasn't that great, but he's older now and I'm older and smarter. He is considered the authority in Dallas on osteoporosis. I know I'll need testing after starting to take the Forteo and I don't know what testing. So I'll make an appt to see him. I did call on Friday to talk to the indocrinologist again and she wAs in another office. I see the problem. She's making too much money with just appointments to bother to follow the patient otherwise. I don't need that. I need to know why I'm breaking bones.

Billye

Hi Billye:

I cannot believe that she will NOT call you back. I would think she would want to refer you on, so you can get help quickly...

If you can't get an appointment with Dr. Sakhaee right away, maybe that wonderful Rheumy you see can get him to squeeze you in... He seems to really want to help you.

Meanwhile, I can't see where I might have posted this, but in case you need to know, Dr. Sakhaee likes to see a bone density done at the same place previous ones have been done for comparison. He said that it is hard to compare bone density studies when they are done at different places... If you had some recent ones done to compare, when you go for the appointment, it would probably save some time.

He wanted all recent bloodwork and also a pathology report for a kidney stone I had some time back. I don't know what he would ask for, since you are on Forteo. Maybe LizaJane knows...

Actually, I don't think most doctors around here do much looking for the "whys," they just prescribe stuff like we all have taken, like Actonel...

Michael Moore could make a great movie out of the frustrations we deal with having chronic health problems...

Cathie

Cathie:

That is a fabulous idea. We should contact Michael Moore. Maybe he can go on Oprah and fight the fight for PN.

I'm giving it a try.

Mel

Silverlady I hope you got a call back. Cathie is right they like the tests and the follow up bone density at the same place cause the machines can be off sometimes. That is what I heard. Really this not calling back of docs is unacceptable. Even $10 an hour jobs if you don't return a call you get fired. The same should be with this. You know on 20/20 how they do undercover camera things for people who get taken advantage of with cars and so on. They should follow one of us to a doc apt and the after care. The way many of us have been treated would scare america that have no clue.

I did get a call back on Monday. But it was just to tell me they had my fax and the nurse was putting it on the doctor's desk. But.........the doctor will not be in the office until Tues or Weds. Weds I will be in Dallas to see the neuro. I'm taking all of this to her and ask her what she suggests.

Thanks for all of the support folks. You are all great!

Billye

Outrageous!!!

Maybe she would like to join this exclusive club:

http://ratemds.com/social/?q=node/8521

When you feel like it, I hope you will post there...

Cathie

Cathie,
I've put in a call for an appt. with your doctor Sakhaee. I'll try him again. I saw my neurologist today. She did another on the spot, I want it right now, MRI's of my lumbar spine. She suspects problems because my reflexes are too brisk again. Like it was when I had the stress fractures in my spine. She also encouraged me to see Dr. Sakhaee. She knows that the Endocrinologist that I've been waiting forever on is having medical problems and she confirmed it was cancer. So I can forgive her not getting back to me. I'll start over again.

Thanks for the help Cathie.
Billye