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Old 12-10-2007, 03:38 PM #1
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Default Sjorgens Sarcoid
Does anyone know of a good site about sjorgens and/or a site to talk to people who know about sjorgens? I know someone who needs information about their sjorgens causing sarcoid which is leading to blindness. I believe Silver Lady runs a site but i dont know what it is.
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Old 12-10-2007, 04:11 PM #2
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Default Hey Joe
Billye is on a site but lost the e-mail adress when my other one crashed.
Does she live in New Your area...I will look are put word out to some
people who are in her area,wouldn't hurt to pm her.I have S.S but not
the same thing she has,but we never know...If we can't find one that she like's there's more of us on this site everyday.. Sue
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Old 12-10-2007, 04:20 PM #3
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He is in New York has been diagnosed with sjorgens and now has sarcoidosis in the eyes, im not sure how they are related and neither is he.
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Old 12-10-2007, 05:03 PM #4
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Lightbulb there is a sarcoid forum...
based on a theory called the Marshall Protocol. (for sarcoid)

You might want to check it out. There are medical posts there.

http://www.marshallprotocol.com/

It has stood the test of time, but is still controversial.
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Old 12-10-2007, 06:17 PM #5
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Try this site...says local support groups.

http://www.sjogrens.org/support/
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Old 12-10-2007, 08:48 PM #6
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Are you sure your not thinking of Sarcordosis it affects the lungs,you can
can have a cough,it also effects the eyes so on. The site C gave you
is the one Billye uses i think... Good luck Joe and friend.. Sue
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