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Old 12-10-2007, 05:03 PM #1
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Lightbulb there is a sarcoid forum...

based on a theory called the Marshall Protocol. (for sarcoid)

You might want to check it out. There are medical posts there.

http://www.marshallprotocol.com/

It has stood the test of time, but is still controversial.
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Old 12-10-2007, 06:17 PM #2
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Try this site...says local support groups.

http://www.sjogrens.org/support/
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Old 12-10-2007, 08:48 PM #3
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Are you sure your not thinking of Sarcordosis it affects the lungs,you can
can have a cough,it also effects the eyes so on. The site C gave you
is the one Billye uses i think... Good luck Joe and friend.. Sue
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Old 12-11-2007, 12:17 PM #4
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Default Sjogren's Forum

Sorry folks,
Long doctor's appt. yesterday.

Hey Joe,
The Sjogren's forum is www.sjogrensworld.org

Very knowledgeable people there.

Billye
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Old 12-11-2007, 04:51 PM #5
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http://rheumatology.oxfordjournals.o.../full/40/1/113

http://ard.bmj.com/cgi/content/abstract/49/6/407

http://www.endocrine-abstracts.org/e.../ea0005p35.htm

Along the same lines as Sue said, there is also an entity called 'carcinoid'. Carcinoid Syndrome or Carcinoid tumors are other interesting topics.

The last website has some interesting info on hypervitaminosis of Vitamin D, which is new info to me. All 3 abstracts concern males, who seldom get the diagnosis of Sjogren's. Billye would probably have the exact stats, but, I belive the incidence is one male to 5 females. Sometimes the gender bias is due to physicians not considering a disease due to old presumptions.
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Old 12-11-2007, 05:00 PM #6
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thank you cyclelops
by the way you are very funny
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Old 12-11-2007, 05:25 PM #7
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You don't live with me!! You might have a different opinion if you were immersed in me 24/7. My husband seems to really love his job lately.

Joe check out my new thread on neuropathy....that might help too.
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Old 12-03-2010, 06:35 PM #8
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Default sarcoidosis affects total body in-side & out-side

Quote:
Originally Posted by shiney sue View Post
Are you sure your not thinking of Sarcordosis it affects the lungs,you can
can have a cough,it also effects the eyes so on. The site C gave you
is the one Billye uses i think... Good luck Joe and friend.. Sue
Just wanted to give additional info re sarcoidosis as it is not limited to a few organs - it is most usually found in the lungs b/c people have more lung x-rays than any other area of the body. Sarcoidosis is permanent scarring of any tissue it invades whether inside or outside the body. Sarcoidosis appears as horribly burned skinned on the outside of the body. It is around my heart, I've lost one-third of lungs to it and almost lost my liver years ago until my liver regenerated itself. Sarcoid can enter all organs and if inside the brain/heart, it is fatal. I cannot rememer the Sarcoidosis site at this time but once my memory kicks in I will post the thread here.
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