I posted in that poll thread but perhaps my question(s) won't get seen there.

I have a positive tinel sign and a am positive for the second problem they mention as well. I have very high insteps which has been a problem all my life in finding shoes that fit comfortably.

http://www.myfootshop.com/detail.asp...nel%20Syndrome

What does this mean? Does it mean my PN could be this tarsal tunnel problem and that the surgery might be the fix?

I also have a high instep and also tendons with fluid around them (ganglions).

It varies from day to day. It is also worse with fluid retention.

Just so you know it has gone down remarkably since I started the r-lipoic acid.
So has my edema.

But I have to be careful of too tightly tied shoes, shoes or boots that hit that area, and I have to have a very soft padded tongue in any tie shoes. (or my feet will go numb)

I just bought a pair of Crocs at Costco and am very happy with them (the real Crocs and not a knockoff). The plastic stretches over the instep and does not compress anything. Many slip on type shoes/sandals hit me wrong).
The first week, the little bumps on the inside bothered me, but now I am used to them.
There is alot of cushioning in the sole, so my heel spur and sesamoids are happy too.

I think I will switch now to Crocs...the slip ons I had were compressing the ball of the foot and I'd have pain at night.

CROCKS...CROCKS...CROCKS.


I have 8 pairs.

EVERYBODY in my neighborhood wears them. We compare colors.

I adore them.

My toes don't get pinched.

I'l put on a pretty green skirt, and put on my pretty green crocs.

Don't care if I look stupid.

I'm not 20 and I really don't care. With neuropathy, it's all about not pinching my toes.

Hurray for Crocks.

Hi. Ok my pain is in my inner ankle foot. So I went to people about the tts surgery and even sent my records to Dillion who is a salesman to me. From the neuros,foot docs etc this surgery is very risky and can cause other issues with nerves. I know for me I am in hell pain but I know there is always a lower rock bottom.For me since I need a lot of support in my feet and I wear shoes when ever I walk that means even to the bathroom at night I wear a good walking shoe. I need to keep my ankle as stable as possible. Now also what I have been told that whether pn,tts,a trapped nerve its more about pain control which I lack at the moment and why I may break down and get a scs. Mrs D can you tell me about this r-lipoic acid and could I take this as well? I have been having swollen ankles and am not sure if it is from the humidity or from being on them more this week then in months combined.

Then getting the TTS may not be a good option. Unless it *is* nerve compression causing all the symptoms. But I surely don't want to tempt fate by possibly causing more nerve issues. *shudder*

I taped and taped and no tingling at all.

I'm not sure what that means. That perhaps your PN is not related to any kind of nerve compression? Maybe someone with more experience or info could jump in here?

I was diagnosed with TTS in March of last year after a year and a half of treatment and testing. I had the surgery November of last year and I could not be happier! I'm not sure who you are considering for your surgery (if you are even considering surgery), but MY advice would be to skip the ortho. The doctor that did my surgery is a reconstructive plastic surgeon. I know it sounds crazy. At least I thought it did. Plastic surgeon? Come on. Let me tell you, she is a genius. She has worked with many diabetic and non-diabetic patients with PN. She has done a lot of research and is extremely knowledgable about PN.

About the surgery: honestly, my pain is no where near where it was a year ago when I was diagnosed. I'm only six months into recovery and she said that I should not even begin to judge the effects of the surgery for 12 months. I may not be fully recovered, but let me tell you: if this is the best it gets I can live with it. This is much better than before.

After seeing this doctor I found that I also have TTS in my other foot that I thought was fine. Here, my other foot was just not as bad. It was determined after the sensation and strength tests that I had it in both feet.

Then I thought to ask her about my hands. Five years ago I began complaining to my medical doctor of pain in my hands. They tested me for carpal tunnel and said I didn't have it. I've dealt with the pain for so long, I never thought to ask her about it. That's when she told me that I had PN.

The TTS is only the location of the nerve compression. Just like CTS is only the compression of the nerves in the carpal tunnel, TTS is the compression of the nerves in the tarsal tunnel. She said that the EEG (I think that's what it was called) is not really the most accurate form of diagnosis when dealing with PN and it probably was just not showing up yet. She said if I would have that same test done now I would fail it miserably.

Sorry that was so long. Hope some of it helped. I'd be glad to chat with you about all this. I remember wishing I had someone to talk to when I was first diagnosed. Well, that's why I'm on here. I'm still looking for people who know what I'm going through!

Take care.

I had carpal tunnel surgery shortly after I was Dx with PN in my feet. To me a light came on but apparently not to the neuro doc Dx'ing me. He went ahead and tested my feet (nerve conduction study) because I was complaining of symptoms at the same time as he tested my hands for surgery. I'd had carpal tunnel syndrome for most of my adult life. Which seems odd to me unless there is a problem that I've inherited somewhere along the line. That is, that there's a problem anatomically that I'm not aware of.

So it would seem I need to find out or rule this out...however they may be able to do it.

See, that is the part that I do not understand! I just dont understand where this came from. It was a little over five years ago that my hands started hurting. Then a little over two years ago when my left foot began hurting. They just started hurting. I had no trauma. No illness. I'd been tested for thyroid problems and diabetes. Nothing.

I just want someone to tell me where it came from! All I've heard so far is that is is probably genetic. I'm just concerned because I do not know if the surgery I just had will cure me forever, or if it will cure me for 10 or 15 years. I'm only 31 and I have kids, a job, etc. I need my hands and feet to work! If it doesn't work in 15 years, then what do I do?! It would just seem to me if I could find out what was causing the PN I could try treating it from that angle.

Not to pry, but have you been given an explanation as to your PN?