I went to the Neuropathy Center in Jacksonville around the end of March. This hospital is listed on the neuropathy.org website. Apparently there are a few of these hospitals around the US that specialize in all types of Neuropathy. (I have peripheral neuropathy due to diabetes) To make a long story short, my husband and I went to this appointment with high hopes, only to be crushed a few hours later. The neurologist looked at all my medical records at my appointment and made me walk across the room and a few other observation tests while in the appointment. He then says, yes you do have peripheral neuropathy. I told him about the feeling that my neuropathy is going into my stomach. He said more than likely that can happen. Well, I was thinking he was going to test for it. All he said was I needed to see a good pain management doctor and not a neurologist and he didn't need to see me again. I did go see a pain management doctor but I would up in the hospital twice due to a shot I had done in my back. So I am kind of leary about going back. I take lyrica and cymbalta which seems to help for the most.
Anyways I got a call from Shands in Jacksonville. The appointment person said there was a different doctor that wants to see me. I can not imagine why and how did he know about me? Do you think maybe he looks over what the doctors have done that day and he found my case to be interesting? I don't know and really don't know what to think about it. I go on the 21st. Anyone have any ideas or suggestions on how this doctor got my info and wanted to see me? I am puzzled! But, I am glad I am getting a second chance to go to this hospital.

Thanks,
Michele

It may be that they are sending you to a doctor that handles autonomic neuropathy (the neuropathy in your stomach) - its usually a GI motility specialist - this type of neuropathy is not handled by neruologists usually - and there are meds to help the stomach issues (called autonomic neruopathy and and when it affects your stomach called gastroparesis) -they may want to do testing in that area - and also maybe testing on possible other autonomic complications like BP, cardiac, etc.... maybe give them a call back and see? Then you'd have an idea what to expect

I do know the doctor that I am seeing likes to schedule his appointments with his patients for 2 hours. The other doctor that I saw the first time there he saw me about 45 minutes. I told the appointment lady I didn't want to waste my time if this doctor was going to do the same. She said no, that he had requested he wanted to see me. So maybe he is going to test me regarding my stomach. I will certainly let everyone know what happens.
thanks for the post.....Michele

with Kmeb, that kind of stuff NEEDs to be checked out! Better to get it looked at before it might be too late.
Don't know how that neuro got your 'records' either in-house or maybe he too has been reading about our plights? Like DarlingDeb's priors posts. Either way YOU ARE GETTING HELP! Sounds to me as if that first Shands neuro gave you a short shrift? The consults I've had at big teaching hospitals in my area were short, because I'd copies of test results and all with me. The first time I was examined for well over an hour. The second a couple of years later it was at least 45 minutes! If I were you? With a new neuro I would expect nothing less than those times. My current neuro [second one] spent over 1-1/2 hours just 'going over' me! Must know every wart and or dimple I have? You know what I mean.
The key here is to get the right examinations, tests, and ideally treatments if possible. I for one truly hope that you get all three of the above. And, SOON! - j
Gosh a thought comes into mind? Does this mean we can't say that Dratted Doc any more? Are we gonna have to watch our language or something? Scary thought in general, tho I've little fear [I think?] I LIKE my docs. HUMMMMM.
I do believe that IF docs could get or try to get a better viewpoint from OUR perspectives that they might be better able to help some, many or most of us! I can always hope?

You know I believe you are right. If more doctors would read what the patients say, then maybe some would be more sympathetic even helpful to their patients.