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Old 09-05-2008, 02:44 AM #31
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mrsD mrsD is offline
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Quote:
Originally Posted by Macophile View Post
Hi!
Thanks for your help. I will look up about those tests.

I agree that diabetic PN is not the most likely, and my endochrinologist agrees. He thinks if it is a cause it is only part of the problem... not the whole problem.

I looked up about CMT, but it doesn't seem to fit. My muscles are fine.

If I haven't been on Vancomycin or Xifaxan for over 6 months before the problem started, I don't know if that could be the cause. I will ask my gastro though.

And as for the "The Marshall Protocol" I can't find anything about sarcoid on their forum... maybe I am just doing it wrong though.
The FAQs section of that forum has alot of info.
The whole forum is based on a treatment of sarcoid. Their treatment however is not commonly used by most doctors yet.
The sarcoid info in the FAQs portion is very long, and based on many patients there asking questions.

here is another link:
http://www.stopsarcoidosis.org/sarco...FQsiIgodIybOiw
which lists symptoms.

There is also a relationship to Vit D and sarcoidosis:
http://www.sarcinfo.com/faq.htm

So you should get that tested also if sarcoid is suspected.

If your PN is confined to the feet, I also think a good evaluation by a podiatrist is needed. Many foot issues can cause pain there. My son has a pronating ankle which was minor and not visually obvious, and had terrible pain when he started college and had to walk miles per day. A simple orthotic changed that completely.
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