Hi - sorry to hear you are now dealing too with this disease- but at least sounds like you are getting testing - etc. as needed - hang in there! I'm glad you found a good doc in your area - and you do live in a beautiful site! I hope you do have a form of PN that will respond to either pain management or other resolve so you can resume some of what you used to do!


On that - the photography - I used to have a camera in my hand every second I wasnt doing the business thing - and had a really decent set of photo equipment ... biggest mistake I made I think when I got sick (8 years ago) was sell most of my camera equipment (at a fraction of what it was worth) because I realized I couldnt move around like I needed at events etc to shoot.... huge mistake.... my PN hasnt improved and motility is very different and no - I cant shoot what I used too - but I missed my photo stuff so much had to get a real decent digital slr and take what I can where I can (usually around the house) but still again now have the satisfaction.... there will always be people and critters around to shoot - and you dont know where the PN is taking you - hang in there! The great thing about puters too - where we used to have to stand for hours in the darkroom is now a few clicks on the mouse! Awesome!

Hope your testing is revealing - and keep us updated