Thank you so much... I keep on going into remission like states, and then each time it comes back more severe... each time the pain gets worse, and the Drs and Endocrine specialist will not give me any pain control other than mild/medium.

I'm doing my very best to keep positive - I know it can get better - but sometimes the pain just gets so much I don't know what to do with myself.

Thanks to your reply I feel more confident about pushing for a Neuro appointment - I've tried 3 times at my Drs surgery, and they all just say wait and see if its the thyroid. It gets very, very frustrating - especially as I can't even take matters into my own hands, get hold of some money and go to a specialist myself. In the UK you have to be referred by a Dr and they won't do that until the thyroid has been ruled out.

I'll try again on Monday when the surgery is open, and if I don't get anywhere I'll just go and sit up in A&E.

Thank you so much for your support and good luck yourself.

Very best

Sue