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Old 02-03-2009, 09:41 AM #11
dmouse dmouse is offline
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Join Date: Jan 2009
Posts: 56
15 yr Member
dmouse dmouse is offline
Junior Member
 
Join Date: Jan 2009
Posts: 56
15 yr Member
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I'll apologize now for any sarcasim in my posts. I'm just extremely frustrated.

I've had health problems for years. In 1987, I miscarried my second child. In 1988, I had to have lung surgery because my lung collapsed 4x in 3 months. In 1990, I almost lost my second child to SIDS, my 3rd and last child I almost miscarried. (Both were born premature - 8th month). I've had 2 TIAs, 1 each during last 2 pregnancies.
I have had pain in my hands for at least the last 9 years. I suffer with migrains. I have scar tissue in my lungs from many, many bouts with pnuemonia starting at 3 yrs old. I have nodules on my thyroid, but no antibodies as a cause. Pain in the general area of my liver or gallbladder with no apperant cause. I now discover I also have a cyst on my liver that wasn't there when the pain started. I have thickening of my esophagus. I have skin discolorations and severe itching. I have pain in my sacrum, that no one can explain. Mild OA in my lumbar region. I trip over nothing, almost as if the floor jumped up to trip me. I have poor muscle control of my hands and I drop things, and struggle to make them type. My BP is low, which causes dizziness.

I have had several CT scans, a heart cath, EMG, HIDA scan, barium swallows, many x-rays of painful joints, tons of vials of blood drawn, urine tests, PFTs. I've seen Rheumatologists, a Scleroderma Specialist, Gastro, Neuro, Endo, Pulmonary...

And no one can tell me what is wrong with me. All they say is it's a symptom of something unknown.

And I'm tired of everyone looking at me as if I have 2 heads. Or thinking (and you see it in their eyes and hear it in their voice) that I'm a hypochondric, looking for attention.

And getting that same reaction from someone who has been there...
It's very discouraging.
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